Jeans for Genes

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I'm doing the Jeans for Genes 100 Skips a Day challenge for Adeline and I need your help!

Adeline is the eldest daughter of my good friends Anna and Michael. At the age of 2 weeks old, Adeline had her first seizure. Since then she has had seizures every single day. She is now almost 5 years old. Think about that for a moment. Nearly every single day of her life, Adeline has had seizure after seizure.

Adeline has a rare genetic disorder called CDKL5 Deficiency Disorder which means she is severely disabled and can not sit, stand, walk, or talk. She is also legally blind.

Research into gene therapy holds the promise of a cure for children with CDKL5 Deficiency Disorder. Any donation, no matter how small, will help raise funds to boost this research. Please help as you can and watch Anna’s fundraising page to keep updated with our progress with the 100 skips a day for August.