Why we're doing Jeans for Genes’ Sofa to 6k
Our team cares about the 1 in 20 Aussie kids who face a birth defect or genetic disease. That's one in every classroom, maybe someone you know or love. Every day, many of these kids wake up to pills, injections, hospital visits (or worse). They don't get the chance to run around and just be kids. If they can endure that, and keep smiling, then the least we can do is fight alongside them. That's why we're doing Jeans for Genes and raising money for Children's Medical Research Institute. We want to give these kids better treatments and maybe even a cure.
We’ve signed up to Sofa to 6K, so we can raise awareness and start the conversation—we need to do all we can to help save more kids’ lives. Can you help by sharing this message with the people you know and asking them to donate too? We (and millions of Aussie kids) thank you for it!
Here's just one example of how, together, we can change things:
When Kalarny was born, he couldn’t hold his head up. He couldn’t move. He was fighting just to breathe. He was diagnosed with Spinal Muscular Atrophy (SMA), and his parents were told he wouldn’t survive to his first birthday. Thanks to research he survived, but he needs regular spinal injections and a wheelchair to get around. If he’d been born just a few years later, he could have received gene therapy. Infants treated with just one injection of gene therapy seem to be cured. It’s early days, but signs indicate that they will go on to lead normal, healthy lives. It’s so effective, SMA has been added to newborn screening and the gene therapy treatment is covered by PBS. An incurable disease just a few years ago, is now curable. Amazing. That’s what we want for more kids and more of the 6000 genetic diseases out there.
There’s lots of work to do, but there is also lots of hope.
Join me. Share this message. Donate. Thank You!
Our Impact
So far this year we helped provide...
201
Hours of research
For every $55 raised, one hour of research is funded
Our Team Members
Jean-ius Club
Effie Kabourakis
Raised so far:
$2,510
Jean-ius Club
Nicholas Mendoza-Jones
Raised so far:
$55
Jean-ius Club
Teresa Allison
Raised so far:
$377
Jean-ius Club
Fonia Chiu
Raised so far:
$514
Jean-ius Club
Ilona Millar
Raised so far:
$515
Jean-ius Club
Clare Azzopardi
Raised so far:
$227
Jean-ius Club
Gisela Johnson
Raised so far:
$111
Jean-ius Club
Saama Dias
Raised so far:
$130
Jean-ius Club
Lee Cannon
Raised so far:
$1,066
Jean-ius Club
Mia Mher
Jean-ius Club
Gabe Zweig
Raised so far:
$672
Jean-ius Club
Lavender Lee
Jean-ius Club
Gurkamal Matharoo
Raised so far:
$264
Jean-ius Club
Rohit Venkat
Raised so far:
$174
Jean-ius Club
Leah Bellassai
Raised so far:
$214
Jean-ius Club
Jana Campbell
Raised so far:
$50
Jean-ius Club
Catherine Fraser
Raised so far:
$20
Jean-ius Club
Jared McLachlan
Jean-ius Club
Melissa Treyvaud-Clark
Raised so far:
$538
Jean-ius Club
Chris' gonna run
Raised so far:
$375
Jean-ius Club
Rahul Jain
Raised so far:
$97
Jean-ius Club
Satveer chahal
Raised so far:
$26
Jean-ius Club
Karla Jeffrey
Jean-ius Club
Albert Swann
Raised so far:
$54
Jean-ius Club
Jade McGlynn
Raised so far:
$593
Jean-ius Club
Lara Borshoff
Raised so far:
$54
Jean-ius Club
Carmen Santo
Raised so far:
$108
Jean-ius Club
Shannon Closey
Jean-ius Club
Constantine Kondos
Raised so far:
$58
Jean-ius Club
Guy Manning
Raised so far:
$55
Jean-ius Club
Kristina Main
Raised so far:
$416
Jean-ius Club
Zac Robinson
Raised so far:
$251
Jean-ius Club
Chris Tohme
Raised so far:
$216
Thank you to our Sponsors
$110
Georgina Willcock
$21
Kelvin Ng
$56
Cris Parker
$150
Roz Lawler
$56
Melania Melawati
Thanks for doing this Effie. It's for a good cause.
$21
Nick Cooper
Well done :)
$200
John Williamson-noble
$106
Robbie O'grady
Go Jade !!
$20
Meg Dalco
$50
Emily Shen
Woohoo go Jade!!
$21
Nat Hetherington
Thank you Jade for supporting such an important cause! So proud of your long distance running achievement this year. Looking forward to supporting you further.
$53
Alex
Good work Rohit, a worthy cause
$53
Alanie
Great work, Clare!
$110
Jan Christie
$52
Grace Mccarthy
$110
Elias Stephen
$11
Kishan Mathy
Boots
$16
Lycia
Amazing work Effie!
$108
Melissa Fai
Thanks for getting behind this cause for all of us, Effie.
$91
Anonymous
$200
Catherine K
$21
Caroline Mathie
Well done Mel!
$108
James & Cayla Kabourakis
$56
Michael Reay
$56
Jon Roberts
Great effort Gabe!
$110
Anonymous
All the best!
$317
Hiroshi Narushima
Well done Effie - hope the legs recover!
$500
Sheila Mcgregor
$56
Jon Roberts
Great effort Effie!
$56
Anonymous
nice one Effie!
$55
Linda Rose Daya
Looking good K!!!
$55
Linda Rose Daya
Go Guy!!!
$55
Linda Rose Daya
Go Gisela!!!
$55
Linda Rose Daya
Time to move it, move it!!!
$56
Richard Cheng
$21
Gurkamal Matharoo
$20
La Ode Azmaly Elbaari Arief
$26
Mitchell Owens
$26
Mitchell Owens
$21
Sb
$21
Mitchell Owens
$21
Mitchell Owens
$56
Sam Nickless
Keep going Rahul!
$56
Timothy Gauci
Awesome effort Kristina!
$211
Michelle Hannon
$56
S
❤️ you go queen x
$56
David Mcglynn
Happy to donate for such a great cause and applaud those who encourage others to donate, including my daughter Jade. Well done!
$104
Leah Bellassai
$90
Muhunthan Kanagaratnam
$32
Sally Randall
$20
Anonymous
$108
Elizabeth Avery
$26
Amanda Doyle
Go Mel, well done you are the super fit and the best! ;o)
$91
Sam Nickless
Well done everyone at G+T
$32
John Tanner
I've got one word to say to you Con! RUN!!!!
$21
Sarah Frketic
Good Luck Mel!
$91
Charbel Moujalli
Good luck Mel!
$91
Peter Bowden
Well done, Mel and team!
$21
John Coumpos
Well done. Congratulations 🎉
$121
Fonia Chiu
$20
Tina Macri
🙌🌹
$106
W T Tan
The best is yet to be
$56
Jose Ruiz
Great work team :-)
$56
Sam Nickless
Keep it up Gurkamal!
$116
Michael Caplan
$26
Gabrielle Lyons
Go team!
$53
Angela Martignago
Great cause!
$53
Angela Martignago
Great cause!
$91
Zoe Stathis
$89
Lloyd
$55
Raquel
$11
Natalie Tredinnick
$200
Tim Gole
$53
Lia White
$100
Tim G
Go Effie!! Awesome effort
$42
Lia White
$56
Claire Harris
$115
Faz
You got this!!
$27
Penny Horsfield
Congratulations on your amazing fundraising and running efforts Effie! You are doing something really wonderful by supporting Jeans for Genes. Thank you so much!
$52
Irene Chin
Go Effie!
$50
Callum
Go Jana!
$56
Roy Groom
Well done guys for making the effort, hope the run goes well!
$100
Chi Han Yeo
Good on you!!!
$110
Craig Semple
$110
Craig Semple
$110
Chris Williams
Go Team G+T!!!
$110
Dave
Good work slapper
$251
Zac Robinson
$53
Diane Osborne
Go Jade. Great to see you running for charity.
$56
Jade Mcglynn
$110
Teresa Allison
$22
Rebecca Shaw
Thank you gorgey xx
$70
Lady Lillary
A great cause.
$520
Anonymous
Good work xoxoxo
$10
Muhunthan Kanagaratnam
$91
Dan Armitage
$44
Syed Naqvi
Row hard or row home! All the best to reach the target Gabe. :)
$11
Melissa Keane
$21
Kitty
$56
Tracey Vitnell
$10
Anastasia Haramis
$10
Anastasia Haramis
$56
Chris Dews
Go Gisela!
$108
Anna Schwartz
Such a great cause Mel, well done!
$110
Sam Nickless
Go Effie!
$56
Aviva Leitch
Well done Effie!!!!!
$10
La Ode Azmaly Elbaari Arief
$53
Anna Sparkes
Get Moving Effie! :)
$54
Dan Quinn
GOOOO EFFIE!!!
$20
Rahul Jain
$91
Anna Ryan
Well done Mel - do an extra KM for me
$110
Pierre Tohme
$50
Sara Ayoub
Go Chris!
$21
Alanna Tohme
Thanks for organising Effie! All the best for your running. Alanna Tohme
$56
Chris Tohme
$105
Anonymous
$100
Mitchell Owens
$55
Ben Cardenas
$54
Lara Borshoff
$11
Jade Mcglynn
$54
Albert Swann
$100
Faz
Well done! xx
$56
Hitomi Honda
$55
Vic Whitby
Go Chris! Smash it!
$56
Hitomi Honda
$105
Archistar.a
Go Chris! Get off that sofa!
$56
Matthew Young
Great work Chris, well done
$104
Chris Clark
$56
Carol
Amazing! Hi Ef!!
$104
Gabe Zweig
$20
Diana Zweig
Better you than me my friend!
$20
Catherine Fraser
$56
Connor Mchugh
$158
Connor Mchugh
Great stuff T
$110
Effie Kabourakis
$20
Judy K
$56
Aaron Lam
$158
Colab Rehab Pty Ltd
$515
Ilona Millar
$110
Tom
A great cause, go for it!!
Go Jadey!