Gem's Story

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Why I’m doing Jeans for Genes

Young Gem has never known life with full vision and her parents have one simple hope - that research will ensure that she is able to keep the little sight that she has.

As is the case for many genetic conditions, the cause of Gem’s vision loss was not immediately obvious. After much testing, she was diagnosed with a rare genetic disorder called  Peter’s anomaly, which causes thinning and clouding of the cornea. Gem uses a cane for mobility and is learning braille.

What has impressed Gem’s parents Dee and Michael so much has been seeing how her ophthalmologist has collaborated with the scientists like Professor Robyn Jamieson at Children’s Medical Research Institute to finalise her diagnosis and look at options for the future.

“When we go in, and we see the doctor, we're not seeing one doctor, we're seeing a team,” Michael said. “And that team isn't just a medical specialist in a hospital, there aren't barriers like that.

“Robyn and her team at Children's Medical Research Institute are collaborating directly with the on-the-ground doctors and they're bringing the therapies straight into play. It really leverages the power of their research and bright minds with one of the best health systems in the world.”

“The importance of giving is that it comes back to you one way or the other. A therapy that initially is very focused on one condition, becomes a platform, which builds and suddenly it's treating hundreds of conditions. And we're seeing this happen in front of our eyes. So really, when you give, it certainly helps our kids, but in the end, it gives back to yourself because you’re changing the future.’’

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Latest updates

19 Jun 2024 by Michael & Dee McGuire

Meet Gem

My Impact

So far this year I helped provide...

243

Hours of research

For every $50 raised, one hour of research is funded

Funds raised over the years

Biggest Donor

Jean-ius Donor

$500

Thank you so much to my biggest supporter, Luis, for donating an incredible $500 to help fund vital research into curing children’s genetic diseases.

Thank you to our Sponsors

$32

Sora Bohme

We always love you Gem. Let support each other and jean for genes together xx

4 days ago

$104

Skylar Gu

2 weeks ago

$26

Christopher Louch

Good luck!

1 month ago

$53

Vireshwar Dravid

1 month ago

$56

Julie Ironside

1 month ago

$158

Dave Brown

Go Gem!! We’re here with you all the way!!

1 month ago

$110

Naresh Mistry

1 month ago

$110

Justine Christie

1 month ago

$53

Tom Neal

Let's go Gem! I hope my donation makes a difference, no matter how small.

1 month ago

$158

Michelle Perera

Take Care Gem

1 month ago

$110

Jishina Anoob

Hope Gem can retain her sight

1 month ago

$21

Tim O'hare

Good luck on reaching your goal.

1 month ago

$42

Steve Ramsay

Best wishes to Michael, Dee and Gem. Amazing to see where Medical Research is going.

1 month ago

$110

Alvin Alcaide

Truly inspiring! Will be here to always support!

1 month ago

$110

Phillip Grasso-nguyen

Go jeans for genes!

1 month ago

$21

Wendy Odonnell

These wonderful people are part of our family. What they are doing for all children is inspirational.

1 month ago

$91

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$91

Colin Kabaara

1 month ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$110

Kelson Ho

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Johnny Tran

Rock these jeans Gem!

1 month ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$53

Nivi Kang

1 month ago

$21

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$21

Anonymous

1 month ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$53

Jason O'connell

Thank you Michael, Gem & Family for raising awareness of this.

1 month ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$110

Maneka M

Way to go Gem!

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Jeffrey Hunt

1 month ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$110

Daniel Coleman

1 month ago

$500

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$500

Luis

1 month ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$106

Anonymous

1 month ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$50

Abhi T

Wishing you all the best, Gem. Rooting for you!! Great cause Mike!

1 month ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$110

Willem

1 month ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$110

Kiara

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Vanessa Pow

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Jim

1 month ago

$158

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$158

Daniel Pak

So good to hear progress is being made! Go Gem!

1 month ago

$92

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$92

Guy

Well done Gem

1 month ago

$56

Natalie Morcos

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Jeya Satyamoorthy

Best wishes to you and for all your efforts Gem . Thank you

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Himanshu Srivastava

1 month ago

$56

Leanne Baratta

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$110

Paul & Sarah-jane Bonner

What a family! We are so proud to be a part of it x

1 month ago

$91

Pardeep Gill

1 month ago

$91

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$110

Lakshmi And Shane West

Well done Gem on all your amazing efforts to support this important cause. Sending loads of love and all our best wishes xoxox

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Sonia Chung

Thank you for being my friend!!

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

From Leo And Aunty Liz

1 month ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$53

Stephanie Tse

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Jade And Aunty Lara

Congratulations Gem on your important fundraising - keep up the great work! So proud of you!

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Scott Hill

1 month ago

$21

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$21

Tim Henderson

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Anonymous

1 month ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$110

Leyla Sapolyo

1 month ago

$53

Poppy & Nanny

1 month ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$26

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$26

Anonymous

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Rebecca Loch

1 month ago

$158

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$158

Anonymous

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Argus Business Solutions Pty Ltd

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Monique Unger

What a fabulous testimonial for a great team. xx

1 month ago

$158

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$158

Anonymous

1 month ago

$100

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$100

Aman Pabla

All the best in raising funds for this worthy cause!

1 month ago

$264

Nick B

1 month ago

$264

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$21

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$21

David Cranney

1 month ago

$300

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$300

Anonymous

1 month ago

$104

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$104

Jenny Liu

1 month ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$106

David Parker

1 month ago

$158

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$158

Angela Dhaliwal

Well done Pip!

1 month ago

$56

Cameron Ramsay

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$110

Notion Digital Forensics

1 month ago

$16

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$16

Anonymous

1 month ago

$91

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$91

Linden Thorley Architects

Well done Gem! An amazing you lady and musician. Never to be underestimated.

1 month ago

$26

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$26

Avery Lan

Thank you for sharing your story. Gem is such a beautiful and lovely young lady.

1 month ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$53

Catherine Coorey

Well done Gem! Cathy is very proud of you.

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Lynn Suwajarat

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Family Of Sabine Rezainia

1 month ago

$30

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$30

Laura Duesbury

I like being your friend! Love Cressy ❤️

1 month ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$56

Amelia Hancock

Go Gem! Love your work

1 month ago

$264

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$264

Jackson G

Gem is my best friend. She is very very nice to me. I want to thank her for all the fun times we have together. Together we will do great things. 🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰

1 month ago

$32

Helen Henderson

Maybe she'll be our Prime Minister one day!

2 months ago

$105

Nancy K

Gem you are truly a remarkable young lady. I really admire the courage and passion shown by you and your family. It is a privileged to know you and your family.

2 months ago

$106

Agnes C

Gem - you are an amazing young lady and it is a credit to your parents too who have done an amazing job. Happy to support such a great cause to continue this important work.

2 months ago