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Why I’m doing Jeans for Genes

Young Gem has never known life with full vision and her parents have one simple hope - that research will ensure that she is able to keep the little sight that she has.

As is the case for many genetic conditions, the cause of Gem’s vision loss was not immediately obvious. After much testing, she was diagnosed with a rare genetic disorder called Peter’s anomaly, which causes thinning and clouding of the cornea. Gem uses a cane for mobility and is learning braille.

What has impressed Gem’s parents Dee and Michael so much has been seeing how her ophthalmologist has collaborated with the scientists like Professor Robyn Jamieson at Children’s Medical Research Institute to finalise her diagnosis and look at options for the future.

“When we go in, and we see the doctor, we're not seeing one doctor, we're seeing a team,” Michael said. “And that team isn't just a medical specialist in a hospital, there aren't barriers like that.

“Robyn and her team at Children's Medical Research Institute are collaborating directly with the on-the-ground doctors and they're bringing the therapies straight into play. It really leverages the power of their research and bright minds with one of the best health systems in the world.”

“The importance of giving is that it comes back to you one way or the other. A therapy that initially is very focused on one condition, becomes a platform, which builds and suddenly it's treating hundreds of conditions. And we're seeing this happen in front of our eyes. So really, when you give, it certainly helps our kids, but in the end, it gives back to yourself because you’re changing the future.’’

Join me. Share this message. Donate. Thank You!

Latest updates

19 Jun 2024 by Michael & Dee McGuire

Meet Gem

Latest donations

$ 104

Tom, Rachel, Rory, Ciaran And Grace Maguire donated at 2 months ago

"Amazing Gem! Best wishes to you, Pip and your Mum and Dad, and all the people involved in this fantastic work x"

$ 57.24

Susan Maguire donated at 2 months ago

$ 21.60

Shakqille Lewis donated at 2 months ago

$ 105.50

The Sargants donated at 2 months ago

"Smashing it❤️"

$ 316.50

Anonymous donated at 3 months ago

"Congratulations to Gem and the team on a wonderful concert!"

$ 130.82

Nipu Jayatilleke donated at 3 months ago

"Gem, you’re a star! We love you and are so proud of you! Thankyou to everyone who supported Gem today , hope you enjoyed your cupcakes and yo yos!"

$ 42.20

Nuala Edgar donated at 3 months ago

"We hope all have a wonderful time at the concert! X"

$ 6.33

Anonymous donated at 3 months ago

$ 55.92

Sarah Cranney donated at 3 months ago

"Hi Gem, You are incredible!"

$ 54

Anonymous donated at 3 months ago

"Best of luck Gem - we are so proud of you! You are such an amazing young girl! Xxx Jade and Aunty Lara"

$ 10.55

Anonymous donated at 3 months ago

"Good lunch for the concert today xxxx"

$ 52.75

Anonymous donated at 3 months ago

$ 15.82

Carlie Gwynne donated at 3 months ago

$ 12.66

David Cranney donated at 3 months ago

$ 90.73

Will Yates donated at 3 months ago

$ 55.92

Stuart Woodmore donated at 3 months ago

$ 15

Alex Hill donated at 3 months ago

"A small donation in honour of Jackson’s birthday. We wish Gem and her family good health and happiness 🩷"

$ 105.50

Louise Maguire donated at 3 months ago

$ 31.65

Sora Bohme donated at 3 months ago

"We always love you Gem. Let support each other and jean for genes together xx"

$ 104

Skylar Gu donated at 3 months ago

$ 26.38

Christopher Louch donated at 4 months ago

"Good luck!"

$ 52.75

Vireshwar Dravid donated at 4 months ago

$ 55.92

Julie Ironside donated at 4 months ago

$ 158.25

Dave Brown donated at 4 months ago

"Go Gem!! We’re here with you all the way!!"

$ 109.72

Naresh Mistry donated at 4 months ago

$ 109.72

Justine Christie donated at 4 months ago

$ 52.75

Tom Neal donated at 4 months ago

"Let's go Gem! I hope my donation makes a difference, no matter how small."

$ 158.25

Michelle Perera donated at 4 months ago

"Take Care Gem"

$ 109.72

Jishina Anoob donated at 4 months ago

"Hope Gem can retain her sight"

$ 21.10

Tim O'hare donated at 4 months ago

"Good luck on reaching your goal."

$ 42.20

Steve Ramsay donated at 4 months ago

"Best wishes to Michael, Dee and Gem. Amazing to see where Medical Research is going."

$ 109.72

Alvin Alcaide donated at 4 months ago

"Truly inspiring! Will be here to always support!"

$ 109.72

Phillip Grasso-nguyen donated at 4 months ago

"Go jeans for genes!"

$ 21.10

Wendy Odonnell donated at 4 months ago

"These wonderful people are part of our family. What they are doing for all children is inspirational."

$ 90.73

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 90.73

Colin Kabaara donated at 4 months ago

$ 109.72

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 109.72

Kelson Ho donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Johnny Tran donated at 4 months ago

"Rock these jeans Gem!"

$ 52.75

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 52.75

Nivi Kang donated at 4 months ago

$ 21.10

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 21.10

Anonymous donated at 4 months ago

$ 53

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 53

Jason O'connell donated at 4 months ago

"Thank you Michael, Gem & Family for raising awareness of this."

$ 109.72

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 109.72

Maneka M donated at 4 months ago

"Way to go Gem!"

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Jeffrey Hunt donated at 4 months ago

$ 109.72

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 109.72

Daniel Coleman donated at 4 months ago

$ 500

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 500

Luis donated at 4 months ago

$ 105.50

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 105.50

Anonymous donated at 4 months ago

$ 50

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 50

Abhi T donated at 4 months ago

"Wishing you all the best, Gem. Rooting for you!! Great cause Mike!"

$ 109.72

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 109.72

Willem donated at 4 months ago

$ 109.72

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 109.72

Kiara donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Vanessa Pow donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Jim donated at 4 months ago

$ 158.25

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 158.25

Daniel Pak donated at 4 months ago

"So good to hear progress is being made! Go Gem!"

$ 92.45

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 92.45

Guy donated at 4 months ago

"Well done Gem"

$ 55.92

Natalie Morcos donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Jeya Satyamoorthy donated at 4 months ago

"Best wishes to you and for all your efforts Gem . Thank you"

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Himanshu Srivastava donated at 4 months ago

$ 55.92

Leanne Baratta donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 109.72

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 109.72

Paul & Sarah-jane Bonner donated at 4 months ago

"What a family! We are so proud to be a part of it x"

$ 90.73

Pardeep Gill donated at 4 months ago

$ 90.73

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 109.72

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 109.72

Lakshmi And Shane West donated at 4 months ago

"Well done Gem on all your amazing efforts to support this important cause. Sending loads of love and all our best wishes xoxox"

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Sonia Chung donated at 4 months ago

"Thank you for being my friend!!"

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

From Leo And Aunty Liz donated at 4 months ago

$ 52.75

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 52.75

Stephanie Tse donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Jade And Aunty Lara donated at 4 months ago

"Congratulations Gem on your important fundraising - keep up the great work! So proud of you!"

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Scott Hill donated at 4 months ago

$ 21.10

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 21.10

Tim Henderson donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Anonymous donated at 4 months ago

$ 109.72

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 109.72

Leyla Sapolyo donated at 4 months ago

$ 52.75

Poppy & Nanny donated at 4 months ago

$ 52.75

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 26.38

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 26.38

Anonymous donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Rebecca Loch donated at 4 months ago

$ 158.25

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 158.25

Anonymous donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Argus Business Solutions Pty Ltd donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Monique Unger donated at 4 months ago

"What a fabulous testimonial for a great team. xx"

$ 158.25

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 158.25

Anonymous donated at 4 months ago

$ 100

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 100

Aman Pabla donated at 4 months ago

"All the best in raising funds for this worthy cause!"

$ 263.75

Nick B donated at 4 months ago

$ 263.75

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 21.10

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 21.10

David Cranney donated at 4 months ago

$ 300

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 300

Anonymous donated at 4 months ago

$ 104

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 104

Jenny Liu donated at 4 months ago

$ 105.50

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 105.50

David Parker donated at 4 months ago

$ 158.25

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 158.25

Angela Dhaliwal donated at 4 months ago

"Well done Pip!"

$ 55.92

Cameron Ramsay donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 109.72

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 109.72

Notion Digital Forensics donated at 4 months ago

$ 15.82

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 15.82

Anonymous donated at 4 months ago

$ 90.73

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 90.73

Linden Thorley Architects donated at 4 months ago

"Well done Gem! An amazing you lady and musician. Never to be underestimated."

$ 26.38

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 26.38

Avery Lan donated at 4 months ago

"Thank you for sharing your story. Gem is such a beautiful and lovely young lady."

$ 53

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 53

Catherine Coorey donated at 4 months ago

"Well done Gem! Cathy is very proud of you."

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Lynn Suwajarat donated at 4 months ago

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Family Of Sabine Rezainia donated at 4 months ago

$ 30

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 30

Laura Duesbury donated at 4 months ago

"I like being your friend! Love Cressy ❤️"

$ 55.92

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 55.92

Amelia Hancock donated at 4 months ago

"Go Gem! Love your work"

$ 263.75

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 263.75

Jackson G donated at 4 months ago

"Gem is my best friend. She is very very nice to me. I want to thank her for all the fun times we have together. Together we will do great things. 🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰"

$ 31.65

Helen Henderson donated at 5 months ago

"Maybe she'll be our Prime Minister one day!"

$ 105

Nancy K donated at 5 months ago

"Gem you are truly a remarkable young lady. I really admire the courage and passion shown by you and your family. It is a privileged to know you and your family."

$ 105.50

Agnes C donated at 5 months ago

"Gem - you are an amazing young lady and it is a credit to your parents too who have done an amazing job. Happy to support such a great cause to continue this important work."

My Impact

So far this year I helped provide...

268

Hours of research

For every $50 raised, one hour of research is funded

Funds raised over the years

Biggest Donor

Jean-ius Donor

$500

Thank you so much to my biggest supporter, Luis, for donating an incredible $500 to help fund vital research into curing children’s genetic diseases.

Thank you to our Sponsors

$104

Tom, Rachel, Rory, Ciaran And Grace Maguire

Amazing Gem! Best wishes to you, Pip and your Mum and Dad, and all the people involved in this fantastic work x

2 months ago

$57

Susan Maguire

2 months ago

$22

We hope all have a wonderful time at the concert! X

2 months ago

Go Gem!! We’re here with you all the way!!

4 months ago

$110

Naresh Mistry

4 months ago

$110

4 months ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$110

4 months ago

$21

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$21

Wishing you all the best, Gem. Rooting for you!! Great cause Mike!

So good to hear progress is being made! Go Gem!

4 months ago

$92

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$92

Guy

Well done Gem

4 months ago

$56

4 months ago

$56

4 months ago

$56

From Leo And Aunty Liz

4 months ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$53

Monique Unger

What a fabulous testimonial for a great team. xx

4 months ago

$158

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$158

4 months ago

$264

Matched Gift

Your donation has been doubled by our sponsors!

Well done Pip!

4 months ago

$56

4 months ago

$16

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$16

4 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$56

Gem you are truly a remarkable young lady. I really admire the courage and passion shown by you and your family. It is a privileged to know you and your family.

5 months ago

$106

Agnes C

Gem - you are an amazing young lady and it is a credit to your parents too who have done an amazing job. Happy to support such a great cause to continue this important work.

5 months ago

Gem's Story

Please Help MeReach My Goal

Raised

$13,412

My Goal

$20,000

Select amount to donate

Why I’m doing Jeans for Genes

Latest updates

Meet Gem

Latest donations

My Impact

Hours of research

Funds raised over the years

Biggest Donor

Jean-ius Donor

$500

Thank you to our Sponsors

Tom, Rachel, Rory, Ciaran And Grace Maguire

Susan Maguire

Shakqille Lewis

The Sargants

Anonymous

Nipu Jayatilleke

Nuala Edgar

Anonymous

Sarah Cranney

Anonymous

Anonymous

Anonymous

Carlie Gwynne

David Cranney

Will Yates

Stuart Woodmore

Alex Hill

Louise Maguire

Sora Bohme

Skylar Gu

Christopher Louch

Vireshwar Dravid

Julie Ironside

Dave Brown

Naresh Mistry

Justine Christie

Tom Neal

Michelle Perera

Jishina Anoob

Tim O'hare

Steve Ramsay

Alvin Alcaide

Phillip Grasso-nguyen

Wendy Odonnell

Matched Gift

Colin Kabaara

Matched Gift

Kelson Ho

Matched Gift

Johnny Tran

Matched Gift

Nivi Kang

Matched Gift

Anonymous

Matched Gift

Jason O'connell

Matched Gift

Maneka M

Matched Gift

Jeffrey Hunt

Matched Gift

Daniel Coleman

Matched Gift

Luis

Matched Gift

Anonymous

Matched Gift

Abhi T

Matched Gift

Willem

Matched Gift

Kiara

Please Help Me
Reach My Goal