Team Emilia Lonsdale

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My name is Emilia and there are so many things that make me special, my laugh, my smile, my ability to light up a room, the love I show my family everyday but there is also something else special about me. I am 1 of roughly 3,500 people living with Cystic Fibrosis (CF) a genetic disease currently with no cure, that affects a person’s lungs and digestive system. People with CF develop abnormal amounts of excessively thick mucus within the lungs, airways and the digestive system. Over time, this creates problems by trapping harmful bacteria which can cause infections and irreversible damage.


My day to day is not like someone else of my age, lots of my day consists of clearing that sticky mucus from my lungs, physio, medicines and a special medicine called enzymes that I take every-time I eat. I also have a special team of people who look after me and my treatment, aside from my mummy and daddy I also have a doctor, nurse, physiotherapist, dietician and pharmacist. I visit these amazing people roughly every 2 months at Westmead Children’s Hospital in their Bandage Bear Clinic. They have been there since my diagnosis when I was only 3 weeks old and help to make sure that I am getting the best possible care.  

Jeans for Genes goes directly into funding The Children's Medical Research Institute who research childhood genetic diseases, cancers and treatments. 


This year I am lucky enough to be an ambassador for Jeans for Genes. My hope is to raise awareness of many genetic diseases and cancers and tell my CF story. 

Latest updates

12 Aug 2022 by Emilia Lonsdale

Thank you everyone!

A message from our little ambassador…. I can’t wipe the smile off my face, not only is it finally Jeans for Genes Day but mummy, daddy and I are blown away by everyone’s support, from donations, to sharing our posts to messages of support. I first hand know the incredible work that the CMRI team do for children like me with Cystic Fibrosis and all other genetic diseases and childhood cancers. 1 in 20 kids are born with genetic disease or birth defect and I am one of them. Please if you can, donate and share our link. Every dollar counts! Love Emilia Make sure you wear your jeans today!
08 Aug 2022 by Emilia Lonsdale

Our goal!

Thank you to everyone who has donated and shared the fundraising page. 
We have updated our goal! 

Lots of love 

Emilia, Jackie and Chris 

07 Aug 2022 by Emilia Lonsdale

Please Donate!

07 Aug 2022 by Emilia Lonsdale

Jeans for Genes is this week

The week we have been working towards is finally here. This Friday is Jeans for Genes day and I am so excited to put on my jeans and show my support and raise some funds for kids just like me. 
Thank you to everyone who has already donated, please share with your family and friends. 
30 Jun 2022 by Emilia Lonsdale

Tune up

CF patients will often need to go in for an annual “tune up” with IV antibiotics prescribed. If this procedure becomes more consistent, a port may be inserted into their chest for easier IV access. Emilia had her first tune up and hospital stay in March, after she had the bacteria pseudomonas. She thankfully for now is all clear!
29 Jun 2022 by Emilia Lonsdale

Meeting researchers

Meeting amazing researchers
29 Jun 2022 by Emilia Lonsdale

My trip to CMRI

Today I had a very special experience. After clinic, I got to visit the Children’s Medical Research Institute and got to meet a very special researcher and got to meet some of the amazing scientists who are working hard to research childhood genetic diseases and cancers and of course Cystic Fibrosis. As a Jeans for Genes Ambassador I had been given a very special invitation that I could not pass up. Associate Professor Leszek who leads the CF research team along with Julie Lam Jeans for Genes Community Fundraising Manager were amazing enough to show mummy, daddy and I around and explain to us the incredible work that is being done not just for Cystic Fibrosis but all genetic diseases and cancers. All money raised during events such as Jeans for Genes go to helping fund their research and without funds could not be carried out. I would not have the diagnosis I do, nor would I have the medications and support in place if it was not for the work of Professor Leszek and his team and my incredible CF medical team at Westmead. I had the best time and look forward to visiting again.
28 Jun 2022 by Emilia Lonsdale

How Cystic Fibrosis affects the lungs

28 Jun 2022 by Emilia Lonsdale

Emilia growing up

Look how much this little warrior has grown! Changing every single day and growing stronger and stronger. Thanks to the research by CRMI and her Cystic Fibrosis team at Westmead Children’s hospital

Latest donations

$ 89.78

Melissa Murray donated at 9 months ago

$ 52.20

Sarah Bryce donated at 9 months ago

"Well done you beautiful family - hope today takes you all one step closer to new research and new hopes."

$ 26.10

Anonymous donated at 9 months ago

"Beautiful girl 💙"

$ 55.33

Briana Filmer donated at 9 months ago

"Love you Emilia!"

$ 53

Jane Pimentel donated at 9 months ago

$ 89.78

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 89.78

Leah Magnisallis donated at 9 months ago

$ 26.10

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 26.10

Kelly Markiewicz donated at 9 months ago

"❤️❤️❤️"

$ 20.88

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 20.88

Amy Reilly donated at 9 months ago

$ 108.58

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 108.58

Valleri Family donated at 9 months ago

"Sending all our love to the strongest little girl! Xx"

$ 89.78

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 89.78

Anonymous donated at 9 months ago

$ 55.33

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 55.33

Amy Morrison donated at 9 months ago

"It’s been a pleasure watching you grow big and strong Emilia, you and your mummy and daddy are incredible people xx"

$ 208.80

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 208.80

Anonymous donated at 9 months ago

$ 31.32

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 31.32

Ling-ling donated at 9 months ago

"Go little Emilia! You are stronger than you know! Xx"

$ 89.78

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 89.78

Surekha Singh donated at 9 months ago

"Wishing you the very best always :)"

$ 160.78

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 160.78

Emilia Lonsdale donated at 9 months ago

$ 26.10

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 26.10

Aliya El-cheikh donated at 9 months ago

"I support you Emilia!"

$ 52.20

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 52.20

John Adcock donated at 9 months ago

"You are my favourite super hero Emilia. A warrior princess who inspires us all."

$ 31.32

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 31.32

Cynthia Oscar donated at 9 months ago

"Wishing you the best of health"

$ 20.88

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 20.88

K & V Kashian donated at 9 months ago

"Wishing you all the very best beautiful Emilia Xx"

$ 53

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 53

Tashmin Ali donated at 9 months ago

"You've got this, beautiful girl! Xx"

$ 31.32

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 31.32

Sowad Elzir donated at 9 months ago

"Wish you all the best beautiful girl"

$ 52.20

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 52.20

Robin Clinghan donated at 9 months ago

$ 55.33

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 55.33

Joanne Lovett donated at 9 months ago

"What a cute ambassador you are Emilia."

$ 31.32

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 31.32

Karen Larmour donated at 9 months ago

"You’re a little legend Emilia. Keep fighting with that gorgeous smile of yours beautiful girl xo"

$ 53

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 53

Aimee And Family donated at 9 months ago

"Keep shining bright beautiful girl 😘"

$ 55.33

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 55.33

Alyce And Josh donated at 9 months ago

"Continue to light up everyone’s life little Emilia!"

$ 313.20

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 313.20

Mummy And Daddy donated at 9 months ago

"From mummy and Daddy"

$ 313.20

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 313.20

Stephen Lonsdale donated at 9 months ago

"From Poppy"

$ 415

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 415

Uncle Pat And Grandma donated at 9 months ago

"From grandma and uncle pat"

$ 31.32

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 31.32

Sarah, Tim & Mason Phillips donated at 9 months ago

"You've got this Emilia! We are so proud of you."

$ 53

Matched Gift donated at 9 months ago

"Your donation has been doubled"

$ 53

Danielle Crosbie donated at 9 months ago

"Go team Emilia! 👏"

$ 55.33

Elizabeth donated at 9 months ago

"Honoured to be given the chance to donate to this worthwhile cause wishing you a speedy recovery Emilia 💕"

$ 53

Lorna Purcell donated at 9 months ago

"❤️‍🩹💞😘"

$ 55.33

Carlie Soh donated at 9 months ago

"Emilia, you are a brave little warrior. You’re an inspiration to young & old. Stay brave always xoxo"

$ 108.58

Annette De Leo donated at 9 months ago

"All for a good cause and you are all truely inspirational xx 😘"

$ 55.33

Michael Stanekovic donated at 9 months ago

$ 55.33

Michael & Jess Humphreys donated at 10 months ago

$ 89.78

Monica Humphreys donated at 10 months ago

$ 5.22

Julia donated at 10 months ago

"*Emilia is such a strong and lucky girl!!!"

$ 53

Julia Corovska donated at 10 months ago

"What an amazing team of people helping others!!! Emilia is suicidal a strong and lucky girl!"

$ 55.33

Yuko Nakagome donated at 10 months ago

"Aunty Yuko loves you little Angel"

$ 50

Ellese Ferdinands donated at 10 months ago

"So proud of Team Emilia!"

$ 26.10

Josh Chamberlain donated at 10 months ago

$ 20.88

Jennifer Siladji donated at 10 months ago

"Wishing you well little sweetie."

$ 20.88

Pina donated at 10 months ago

"Good luck Emilia! Your such a warrior"

$ 31.32

Giulia donated at 10 months ago

"God Bless you Emilia 🙏😘😘😘😘😘"

$ 10.44

Jordan Dervish donated at 10 months ago

$ 40

Brittany Ferdinands donated at 10 months ago

"Beautiful Emilia 🤍 so inspired by your story x"

$ 108.58

Suzanne Hoadley donated at 10 months ago

"Thank you for sharing Emilia - you are a little ray of sunshine x"

$ 55.33

Katie Robins donated at 10 months ago

$ 104

Ben Lucic donated at 11 months ago

"An absolute warrior, love uncle Ben"

$ 156.60

Ada & Anma donated at 11 months ago

"We are so proud of you our precious Emilia. Love you, Ada & Anma"

$ 120

Uniplas donated at 11 months ago

"From the staff at Uniplas to support Emilia"

$ 55.33

Jack And Cooper Parry donated at 11 months ago

$ 55.33

Chris And Jackie donated at 11 months ago

$ 130

Uniplas Staff donated at 11 months ago

My Achievements

Created a Team

Reached 25% of fundraising target

Reached 50% of fundraising target

Reached 75% of fundraising target

Reached 90% of fundraising target

Reached 100% of fundraising target

Set a higher target for myself

Made a self-donation

Shared on social media

Uploaded Profile Picture

Received 5 donations

Updated Blog