Why we're doing Jeans for Genes
Our team cares about the 1 in 20 Aussie kids who face a birth defect or genetic disease. That's one in every classroom, maybe someone you know or love. Every day, many of these kids wake up to pills, injections, hospital visits (or worse). They don't get the chance to run around and just be kids. If they can endure that, and keep smiling, then the least we can do is fight alongside them. That's why we're doing Jeans for Genes and raising money for Children's Medical Research Institute. We want to give these kids better treatments and maybe even a cure.
We’ve signed up to do our own thing, so we can raise awareness and start the conversation—we need to do all we can to help save more kids’ lives. Can you help by sharing this message with the people you know and asking them to donate too? We (and millions of Aussie kids) thank you for it!
Here's just one example of how, together, we can change things:
When Kalarny was born, he couldn’t hold his head up. He couldn’t move. He was fighting just to breathe. He was diagnosed with Spinal Muscular Atrophy (SMA), and his parents were told he wouldn’t survive to his first birthday. Thanks to research he survived, but he needs regular spinal injections and a wheelchair to get around. If he’d been born just a few years later, he could have received gene therapy. Infants treated with just one injection of gene therapy seem to be cured. It’s early days, but signs indicate that they will go on to lead normal, healthy lives. It’s so effective, SMA has been added to newborn screening and the gene therapy treatment is covered by PBS. An incurable disease just a few years ago, is now curable. Amazing. That’s what we want for more kids and more of the 6000 genetic diseases out there.
There’s lots of work to do, but there is also lots of hope.
Join me. Share this message. Donate. Thank You!
Our Impact
So far this year we helped provide...
223
Hours of research
For every $55 raised, one hour of research is funded
Thank you to our Sponsors
$264
Zakir Abdallaoui
$20
Andrew Muston
$211
Andrew W Muston
Let's gooo sexy!
$150
Jeans For Genes
Your donation has been doubled
$150
Marcus Blease
$110
Jeans For Genes
Your donation has been doubled
$110
Guy Smith
😘
$110
Jeans For Genes
Your donation has been doubled
$110
Anonymous
$26
Jeans For Genes
Your donation has been doubled
$26
Karla Stewart-sykes
My favourite budgy smuggler boss eva! K2
$104
Tom Alexander
Good luck Rob! x
$56
Audrey Blackburn
Careful of the frostbite!
$110
Anonymous
The thing is you would probably do that for free anyway
$26
Dean Ellis
Congratulations Rob!
$264
Toni Maticevski
$110
Wendy Gold
Thank you for all the great work you’re doing to raise funds for medical research.
$108
Tobias Evans
Take care mate. All the best
$264
Adam Robinson
Go girlfriend
$211
Sarah & Kym
Love you both xx
$1.02k
Anonymous
Hope you wear your new goggles and helmet to keep you warm !
$89
Tory Lattin
$210
Joan Showniruk
Well done Robert xx🥂
$110
Deborah Smith
You are a legend my darling friend.
$210
Stephen Carrodus
Gee I hope you look good with a shaved head on skis in a banana hammock….. beautiful thing to do for your beautiful Mum. Xx
$91
Yaku Potgieter
$56
Rachel Tanner
$520
Guy Wynn
$110
Jason Forsyth
Great cause Rob xx
$110
Stephen Minahan
For Sue xxx
$1k
Anonymous
$110
Kim Alfeldi
$520
Frank Martin
$520
J
$264
Dave & Emma
Go Sue and go Rob ❤️ wishing you both the best!
$250
Bec Mcconnochie
Be careful you don’t end up like Harry! All my love to you and Sue xx
$56
Rosheen Singh
Sending so much love and support. What a brilliant thing to do.
$250
Marcus Blease
$317
Anonymous
$317
Julian And Rez
A great cause Robbie and my best wishes to Sue on this next part of the journey - much love from Dubai
$250
Ian & Jay
Good luck Robbie - great initiatives. Sending our love to you and sue x
$211
Adam M
$500
Albert Wong
Good on you and good luck Robert👍
$1.82k
Lowes
Beautiful son. Beautiful person
$54
Blair Mcauliffe
Sending love for Sue’s speedy recovery
$264
Anonymous
$500
Robert Wynn
God I hope I look good with a shaved head
Well done Robbie!