Bloom Syndrome - A Rare Genetic Condition

Why I’m doing Jeans for Genes

I am raising funds for Jeans for Genes Day this year, to raise money for Children’s Medical Research Institute which is a cause very close to my heart. 

I aim to raise $1,000 which will help save more kids’ lives. 

Their impact will not only impact many families living with a loved one who has a genetic condition, but also my own family. 

I care about the 1 in 20 Aussie kids who face a birth defect or genetic disease, like cancer. Most people don’t know that cancer is caused by changes in genes—but almost everyone will be touched by it. So, the research you and I support today may one day help someone we know, someone in our family.

By donating $350 will fund research to find more personalised cancer treatments with fewer side effects. 

By donating $1,000 which is my total fundraising goal, this will bring CRMI 4 days closer to a cure for a child living with a genetic disease. 

Here's just one story explaining why this cause is so important:

Harrison was a healthy, active child, until one day out of the blue, “He wasn’t quite right, and then the next day he just stopped walking, and we knew something was very wrong,” said his father, Adam.

Doctors found something wrong with his blood, and when his parents were told it could be leukaemia “everything stopped.” As terrifying as that word was for them to hear, it got worse as Harrison’s case was unique, and it took many DNA tests to determine he had acute myeloid leukaemia (AML). They were lucky to get the right treatment after the right diagnosis, but it could have gone very differently if that work had not been done.

“Medical research is so important to get any answers for any genetic condition,” said his mum, Naomi. “For Harrison, the research done prior to him getting sick is what helped save our son. Research needs to continue so the next child diagnosed with a rare form of AML or any cancer—it can help them.”

There’s lots of work to do, but there is also lots of hope.

Join me. Share this message. Donate. Thank You!