Fund-raising for Freya

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Why I’m doing Jeans for Genes

Freya was diagnosed with a rare genetic disease called methylmalonic acidemia Mutase null at only 6 days old.

Methylmalonic acidemia is a metabolic disorder where the body cannot process certain protein and fats properly which results in a high level of methylmalonic acid to build in her body. 

Unfortunately there is very little treatment and no cure. Common viral, bacterial and gastroenteritis can result in a metabolic crisis which can lead to serious life-threatening consequences such as organ damage, brain damage, stroke, coma and death. 

We need a cure or some form of treatment so Freya can hopefully live a long and healthy life. 

This is where you can help. 

Genes for jeans is fund-raising for the Childrens Research Institute.

Children's Medical Research Institute (CMRI) is an Australian-based independent medical research institution located in Westmead, Sydney NSW that conducts research into children's genetic diseases. As of 2019, current research is focused on cancer, birth defects, neurological conditions such as epilepsy, and gene therapy to treat genetic diseases

Please support Jeans for Genes and aid in helping discover treatments and cures, for the 1 in 20 kids facing a birth defect or genetic disease 

Latest updates

24 Jun 2022 by Beth Crookes

Why we fund raise 🥳

Latest donations

$ 55.92

Courtney & Simon Kirk donated at today

$ 316.50

Bridgette donated at today

"With all of our love to Freya, our little warrior"

$ 53

Rachel Merton donated at 1 days ago

$ 117.22

Robert Merton donated at 1 days ago

$ 55.92

Beth Crookes donated at 1 days ago

$ 15

David Anderton donated at 2 days ago

"Kick but Freya"

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