Balliang East PS

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Why I’m doing Jeans for Genes' Wear Your Jeans

I care about the 1 in 20 Aussie kids who face a birth defect or genetic disease. That’s one in every classroom, maybe someone you know or love. Every day, many of these kids wake up to pills, injections, hospital visits (or worse). They never get the chance to run around and just be kids. If they can endure that, and keep smiling, then the least I can do is fight alongside them. That’s why I’m doing Jeans for Genes and raising money for Children’s Medical Research Institute. I want to give these kids better treatments and maybe even a cure.

I’ve signed up to Wear Jeans, so I can raise awareness and start the conversation—we need to do all we can to help save more kids’ lives. Can you help by sharing this message with the people you know and asking them to donate too? I (and millions of Aussie kids) thank you for it!

Here's just one example of how, together, we can change things:

When Kalarny was born, he couldn’t hold his head up. He couldn’t move. He was fighting just to breathe. He was diagnosed with Spinal Muscular Atrophy (SMA), and his parents were told he wouldn’t survive to his first birthday. Thanks to research, he survived, but he needs regular spinal injections and a wheelchair to get around. If he’d been born just a few years later, he could have received gene therapy. Infants treated with just one injection of gene therapy seem to be cured. It’s early days, but signs indicate that they will go on to lead normal, healthy lives. It’s so effective, SMA has been added to newborn screening and the gene therapy treatment is covered by PBS. A disease that was incurable, a death sentence, just a few years ago, is now curable. Amazing. That’s what I want for more kids and more of the 6000 genetic diseases out there.

You might think you won’t need this research, that it’s not personal, but genetic diseases are a ticking timebomb. Most families don’t know they carry the gene for a disease, and many genetic diseases are not even inherited—they happen randomly, out of the blue. Like Kalarny’s. Like cancer. Most people don’t know that cancer is caused by changes in genes—but almost everyone will be touched by it. So, the research you and I support today may one day help someone we know, someone in our family.

There’s lots of work to do, but there is also lots of hope.

Join me. Share this message. Donate. Thank You!

Our Impact

So far this year we helped provide...

28

Hours of research

For every $55 raised, one hour of research is funded

Thank you to our Sponsors

$106

Wendy De Domenico

2 weeks ago

$5

Jeans For Genes

Your donation has been doubled

2 months ago

$5

Haylei Smith

Smith

2 months ago

$6

Jeans For Genes

Your donation has been doubled

2 months ago

$6

Dane & Olivia

2 months ago

$92

Jeans For Genes

Your donation has been doubled

2 months ago

$92

Anonymous

2 months ago

$5

Jeans For Genes

Your donation has been doubled

2 months ago

$5

De Domenico

2 months ago

$16

Jeans For Genes

Your donation has been doubled

2 months ago

$16

Katrina Mudie

Mudies

2 months ago

$11

Jeans For Genes

Your donation has been doubled

2 months ago

$11

Hayden & Xander

Hayden & Xander

2 months ago

$5

Jeans For Genes

Your donation has been doubled

2 months ago

$5

Rebecca Wilkinson

2 months ago

$11

Jeans For Genes

Your donation has been doubled

2 months ago

$11

Sarah Elizabeth Barnes

2 months ago

$21

Jeans For Genes

Your donation has been doubled

2 months ago

$21

Amy Nardo

2 months ago

$5

Jeans For Genes

Your donation has been doubled

2 months ago

$5

Maddison Cooke

2 months ago

$11

Jeans For Genes

Your donation has been doubled

2 months ago

$11

Mickie Pilbeam

2 months ago

$10

Jeans For Genes

Your donation has been doubled

2 months ago

$10

Dimity Shaw

2 months ago

$21

Jeans For Genes

Your donation has been doubled

2 months ago

$21

Melanie F

2 months ago

$16

Jeans For Genes

Your donation has been doubled

2 months ago

$16

Siana

2 months ago

$10

Jeans For Genes

Your donation has been doubled

2 months ago

$10

Tammy Rogers

Marley and Henry Fletcher

2 months ago

$5

Jeans For Genes

Your donation has been doubled

2 months ago

$5

Lucy Hackett

2 months ago

$11

Jeans For Genes

Your donation has been doubled

2 months ago

$11

Julie Wood

2 months ago

$21

Jeans For Genes

Your donation has been doubled

2 months ago

$21

Madeline And Grace Hytongue

2 months ago

$11

Jeans For Genes

Your donation has been doubled

2 months ago

$11

Sue Lowen

2 months ago

$16

Jeans For Genes

Your donation has been doubled

2 months ago

$16

Lizetta Magri

Magri boys x3

2 months ago

$5

Jeans For Genes

Your donation has been doubled

2 months ago

$5

Jillie Ella Ly Khurana

2 months ago

$21

Jeans For Genes

Your donation has been doubled

2 months ago

$21

Lyn Mclaverty

2 months ago

$11

Katrina Trotman

2 months ago

$53

Ian Tan

2 months ago

$56

Hudson Simunovic

2 months ago

$56

Victoria Eley

2 months ago

$21

Belinda Allen

2 months ago

$21

Dan And Jax Fosdick

2 months ago

$5

Naevia Kalpakas

Naevia Kalpakas donation.

2 months ago

$127

Christian Prasad

2 months ago

$21

Zoe Mangion

2 months ago

$42

Trudi Rees

2 months ago

$56

Sarah Rees

2 months ago

$21

Lilian And Archer Farrugia

2 months ago

$21

Andrea Stradiotto

2 months ago

$5

Rebecca Clark

Sophie Clark

2 months ago

$21

Natalie Power

Theodore, William & Elizabeth

2 months ago

$26

Cheryl And Ava Mullins

From Ava Mullins

2 months ago

$21

Katrina Bozzella

2 months ago

$21

Anonymous

2 months ago

$11

Hennessy/hurst

2 months ago

$5

Jackson Dole

2 months ago

$92

Jacob Kubicki

2 months ago

$11

Sam Hartigan

Jameson and Matthew

2 months ago

$52

Caryn Fox

4 months ago