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Why I’m doing Jeans for Genes

A series of red spots on Amity’s cheek look innocent enough – but they actually reveal a more serious genetic condition that could have a devastating impact.

Amity was born happy and healthy, but it was when some little red spots on her cheek started to grow bigger that her parents Cass and Luke became worried. A dermatologist sent Amity for genetic testing – which confused her parents.

In the end Amity’s condition was so rare that it took two years for her parents to get a final diagnosis of Capillary Malformation-Arteriovenous Malformation Type 2. It impacts her capillaries and can lead to stroke.

“She could end up with one enlarged vein that runs over the top of the brain that can put pressure on the brain and cause seizures, or if she has nosebleeds or headaches, then it could be the sign of a stroke,’’ Cass said. “It took a while to sink in, what could happen, and it's scary.’’

In 2023 they did their first Jeans for Genes fundraiser to educate others about rare genetic conditions. They raised an extraordinary $13,000 in one week!

“I had an overwhelming response from friends who had no idea about Amity’s condition,’’ Luke said. “To have phone calls, we’re talking grown men who would happily get on the phone and have a conversation with you and cry on the phone. It's very overwhelming. And you know, it's going towards a good cause.’’

“It's a child's life – it’s the only way I could put it. This fundraising goes towards many children's lives. And it may not happen now - but it's something that could in the future help someone's child live a long life. ‘’

Join me. Share this message. Donate. Thank You!

Latest updates

19 Jun 2024 by Cass Wright

Meet Amity

Latest donations

$ 21.10

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 21.10

Nadine Roach donated at 4 months ago

$ 105.50

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 105.50

Belinda Barbagallo donated at 4 months ago

"Wishing Amity and her family all the best!"

$ 100

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 100

Jacqui donated at 4 months ago

$ 211

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 211

Graham And Sharyl Jay donated at 4 months ago

"Wishing you a successful Fundraiser. All our love uncle Graham and Aunty Sharyl."

$ 158.25

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 158.25

Ivan Paule donated at 4 months ago

$ 162

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 162

Matthew Jay donated at 4 months ago

"Your family loves you dearly Amity! Kee"

$ 520

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 520

Francis Makerry donated at 4 months ago

"We love you to the moon and back Amity. God bless you, St Michael the Archangel watch over and protect you. Love Dordor and Tate xx"

$ 5.82k

Amity's Big Fancy Fundraiser donated at 4 months ago

$ 211

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 211

Anonymous donated at 4 months ago

"A worthy cause and we’re happy to support"

$ 158.25

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 158.25

Anonymous donated at 4 months ago

"A worthy cause! We’re glad to be a part of the fundraising"

$ 86

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 86

Anonymous donated at 4 months ago

$ 52.75

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 52.75

Susan Garrett donated at 4 months ago

$ 1.11k

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 1.11k

Amity donated at 4 months ago

"Amitys Big Fancy Fundraiser"

$ 53

Matched Gift donated at 4 months ago

"Your donation has been doubled by our sponsors!"

$ 53

Pina Bernard donated at 4 months ago

$ 158.25

Peter Zeait donated at 4 months ago

"May God continue to bless you and your beautiful family. We are praying for you all and hope with God grace the challenges of each day may be shared by the angels and the saints."

$ 52.75

Angela Cavallo donated at 4 months ago

$ 316.50

David & Ann Yamin donated at 4 months ago

"Amity, wishing you all the best in your fund raising efforts. Well done!"

$ 263.75

Anonymous donated at 4 months ago

"Given with faith hope and love. R+GXxx"

$ 52.75

Penny Horsfield donated at 4 months ago

"Thank you so much for being our Ambassador this year! We are so grateful for your time, energy and support! We couldn't do this without all of you!"

$ 90.73

Chris Cloumassis donated at 4 months ago

$ 211

Ienco Family donated at 4 months ago

$ 150

Budwi Zahia Gittani donated at 4 months ago

"God bless you and all."

$ 55.92

Maya donated at 4 months ago

$ 400

Shadi & Jade donated at 4 months ago

"God bless you Amity"

$ 316.50

Lh donated at 4 months ago

$ 158.25

Anonymous donated at 5 months ago

$ 86

Louise donated at 5 months ago

$ 211

Anth T donated at 5 months ago

$ 105.50

Karen Wright donated at 5 months ago

"Reach for the Stars Amity Love you"

$ 150

David Whitbourn donated at 5 months ago

$ 55.92

Mia F (school) donated at 5 months ago

$ 55.92

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 55.92

Ada Wong donated at 5 months ago

$ 211

Tony And Robyn Lahood donated at 5 months ago

$ 90.73

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 90.73

Annie donated at 5 months ago

"💜"

$ 159.75

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 159.75

Lockstar Homes donated at 5 months ago

"Keep up the wonderful fundraising work for Jeans for genes, Amity you are a little legend 🥰"

$ 211

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 211

Daniel Dib donated at 5 months ago

$ 55.92

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 55.92

Gemma Rheinberger donated at 5 months ago

$ 109.72

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 109.72

Josh And Karen donated at 5 months ago

"Go Amity go science"

$ 105.50

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 105.50

Edgar Soto donated at 5 months ago

$ 21.10

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 21.10

Anonymous donated at 5 months ago

$ 520

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 520

Greg & Kate Hunter donated at 5 months ago

$ 42.20

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 42.20

Charlene Scicluna donated at 5 months ago

$ 109.72

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 109.72

Sekuloski Family donated at 5 months ago

"Sending our love to Amity and the family."

$ 36.93

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 36.93

Jessica Robinson donated at 5 months ago

$ 109.72

Milaika Carrasco donated at 5 months ago

"❤️❤️❤️"

$ 109.72

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 109.72

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 109.72

Bridgette And Milaika donated at 5 months ago

"We love you always beautiful girl so proud of you ❤️"

$ 105.50

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 105.50

Chantalle Samrani donated at 5 months ago

$ 158.25

Matched Gift donated at 5 months ago

"Your donation has been matched!"

$ 158.25

David Tinyow donated at 5 months ago

"Thanks Amity for providing care, kindness and strength to Others around you on your journey. Cheers, Dave."

$ 211

Anonymous donated at 5 months ago

$ 105.50

James Naumcevski donated at 5 months ago

$ 200

Wendy And Rami Sorial donated at 5 months ago

"Best wishes Amity🙏🙏"

$ 100

Gisella Zehetner donated at 5 months ago

"Hope they find a solution soon. God bless"

$ 55.12

Eddie Abousleiman donated at 5 months ago

"Best wishes, God Bless 🙏"

$ 109.72

Maria Buda donated at 5 months ago

"God Bless you Amity. May the funds raised go towards finding a cure for you and so many other children. ❤️"

$ 158.25

Enza R Leonardi donated at 5 months ago

$ 55.92

Claudia Cimilio donated at 5 months ago

$ 55.92

Mitch Dodd donated at 5 months ago

"All the best Amity"

$ 55.92

Charlie Moussa donated at 5 months ago

$ 2.01k

Bruno And Amanda Maurel donated at 5 months ago

$ 500

Janette Bainou donated at 5 months ago

"You are a brave little girl. We are so very proud of you. Lots of love 💝"

$ 53

Clare Whitelock donated at 5 months ago

"Best wishes for the success and help with this fundraiser."

$ 211

Anonymous donated at 5 months ago

$ 53

Anonymous donated at 5 months ago

$ 156

Loncare Pty Ltd donated at 5 months ago

"Best wishes"

$ 520

Watercraftpro Watercraftpro donated at 5 months ago

"Godbless 🙏"

$ 52.75

Matty Svinos donated at 5 months ago

$ 520

Custom Suspension And Auto Bailey donated at 5 months ago

My Impact

So far this year I helped provide...

479

Hours of research

For every $50 raised, one hour of research is funded

Funds raised over the years

Biggest Donor

Jean-ius Donor

$5,816

Thank you so much to my biggest supporter, Amity's Big Fancy Fundraiser, for donating an incredible $5,816 to help fund vital research into curing children’s genetic diseases.

Thank you to our Sponsors

$21

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$21

4 months ago

$211

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$211

Graham And Sharyl Jay

Wishing you a successful Fundraiser. All our love uncle Graham and Aunty Sharyl.

4 months ago

$158

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$158

$53

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$53

4 months ago

$158

Peter Zeait

May God continue to bless you and your beautiful family. We are praying for you all and hope with God grace the challenges of each day may be shared by the angels and the saints.

4 months ago

$53

4 months ago

$211

Ienco Family

4 months ago

$150

Budwi Zahia Gittani

God bless you and all.

4 months ago

$56

Maya

4 months ago

$400

Shadi & Jade

God bless you Amity

David Whitbourn

4 months ago

$56

Mia F (school)

5 months ago

$56

Matched Gift

Your donation has been matched!

5 months ago

$56

Ada Wong

5 months ago

$211

5 months ago

$56

Matched Gift

Your donation has been matched!

5 months ago

$56

Sending our love to Amity and the family.

5 months ago

$37

Matched Gift

Your donation has been matched!

5 months ago

$37

5 months ago

$158

Matched Gift

Your donation has been matched!

5 months ago

$158

David Tinyow

Thanks Amity for providing care, kindness and strength to Others around you on your journey. Cheers, Dave.

5 months ago

$211

Anonymous

5 months ago

$106

5 months ago

$56

Claudia Cimilio

5 months ago

$56

Mitch Dodd

All the best Amity

5 months ago

$56

Charlie Moussa

5 months ago

$2.01k

5 months ago

$53

5 months ago

$520

Custom Suspension And Auto Bailey

5 months ago

Amity's Story

Please Help MeReach My Goal

Raised

$23,949

My Goal

$13,000

Select amount to donate

Why I’m doing Jeans for Genes

Latest updates

Meet Amity

Latest donations

My Impact

Hours of research

Funds raised over the years

Biggest Donor

Jean-ius Donor

$5,816

Thank you to our Sponsors

Matched Gift

Nadine Roach

Matched Gift

Belinda Barbagallo

Matched Gift

Jacqui

Matched Gift

Graham And Sharyl Jay

Matched Gift

Ivan Paule

Matched Gift

Matthew Jay

Matched Gift

Francis Makerry

Amity's Big Fancy Fundraiser

Matched Gift

Anonymous

Matched Gift

Anonymous

Matched Gift

Anonymous

Matched Gift

Susan Garrett

Matched Gift

Amity

Matched Gift

Pina Bernard

Peter Zeait

Angela Cavallo

David & Ann Yamin

Anonymous

Penny Horsfield

Chris Cloumassis

Ienco Family

Budwi Zahia Gittani

Maya

Shadi & Jade

Lh

Anonymous

Louise

Anth T

Karen Wright

David Whitbourn

Mia F (school)

Matched Gift

Ada Wong

Tony And Robyn Lahood

Matched Gift

Annie

Matched Gift

Lockstar Homes

Matched Gift

Daniel Dib

Matched Gift

Gemma Rheinberger

Matched Gift

Josh And Karen

Matched Gift

Edgar Soto

Matched Gift

Anonymous

Matched Gift

Please Help Me
Reach My Goal