Amity's Story

Share my page

Why I’m doing Jeans for Genes

A series of red spots on Amity’s cheek look innocent enough – but they actually reveal a more serious genetic condition that could have a devastating impact.

Amity was born happy and healthy, but it was when some little red spots on her cheek started to grow bigger that her parents Cass and Luke became worried. A dermatologist sent Amity for genetic testing – which confused her parents.

In the end Amity’s condition was so rare that it took two years for her parents to get a final diagnosis of Capillary Malformation-Arteriovenous Malformation Type 2. It impacts her capillaries and can lead to stroke.

“She could end up with one enlarged vein that runs over the top of the brain that can put pressure on the brain and cause seizures, or if she has nosebleeds or headaches, then it could be the sign of a stroke,’’ Cass said. “It took a while to sink in, what could happen, and it's scary.’’

In 2023 they did their first Jeans for Genes fundraiser to educate others about rare genetic conditions. They raised an extraordinary $13,000 in one week!

“I had an overwhelming response from friends who had no idea about Amity’s condition,’’ Luke said. “To have phone calls, we’re talking grown men who would happily get on the phone and have a conversation with you and cry on the phone. It's very overwhelming. And you know, it's going towards a good cause.’’

“It's a child's life – it’s the only way I could put it. This fundraising goes towards many children's lives. And it may not happen now - but it's something that could in the future help someone's child live a long life. ‘’

Join me. Share this message. Donate. Thank You!

Latest updates

19 Jun 2024 by Cass Wright

Meet Amity

My Impact

So far this year I helped provide...

189

Hours of research

For every $50 raised, one hour of research is funded

Funds raised over the years

Biggest Donor

Jean-ius Donor

$2,015

Thank you so much to my biggest supporter, Bruno and Amanda Maurel, for donating an incredible $2,015 to help fund vital research into curing children’s genetic diseases.

Thank you to our Sponsors

$56

Mia F (school)

2 days ago

$56

Matched Gift

Your donation has been matched!

3 days ago

$56

Ada Wong

3 days ago

$211

Tony And Robyn Lahood

3 days ago

$91

Matched Gift

Your donation has been matched!

4 days ago

$91

Annie

💜

4 days ago

$160

Matched Gift

Your donation has been matched!

4 days ago

$160

Lockstar Homes

Keep up the wonderful fundraising work for Jeans for genes, Amity you are a little legend 🥰

4 days ago

$211

Matched Gift

Your donation has been matched!

4 days ago

$211

Daniel Dib

4 days ago

$56

Matched Gift

Your donation has been matched!

4 days ago

$56

Gemma Rheinberger

4 days ago

$110

Matched Gift

Your donation has been matched!

4 days ago

$110

Josh And Karen

Go Amity go science

4 days ago

$106

Matched Gift

Your donation has been matched!

4 days ago

$106

Edgar Soto

4 days ago

$21

Matched Gift

Your donation has been matched!

4 days ago

$21

Anonymous

4 days ago

$520

Matched Gift

Your donation has been matched!

4 days ago

$520

Greg & Kate Hunter

4 days ago

$42

Matched Gift

Your donation has been matched!

4 days ago

$42

Charlene Scicluna

4 days ago

$110

Matched Gift

Your donation has been matched!

4 days ago

$110

Sekuloski Family

Sending our love to Amity and the family.

4 days ago

$37

Matched Gift

Your donation has been matched!

4 days ago

$37

Jessica Robinson

4 days ago

$110

Milaika Carrasco

❤️❤️❤️

4 days ago

$110

Matched Gift

Your donation has been matched!

4 days ago

$110

Matched Gift

Your donation has been matched!

4 days ago

$110

Bridgette And Milaika

We love you always beautiful girl so proud of you ❤️

4 days ago

$106

Matched Gift

Your donation has been matched!

4 days ago

$106

Chantalle Samrani

4 days ago

$158

Matched Gift

Your donation has been matched!

4 days ago

$158

David Tinyow

Thanks Amity for providing care, kindness and strength to Others around you on your journey. Cheers, Dave.

4 days ago

$211

Anonymous

5 days ago

$106

James Naumcevski

6 days ago

$200

Wendy And Rami Sorial

Best wishes Amity🙏🙏

1 week ago

$100

Gisella Zehetner

Hope they find a solution soon. God bless

1 week ago

$55

Eddie Abousleiman

Best wishes, God Bless 🙏

1 week ago

$110

Maria Buda

God Bless you Amity. May the funds raised go towards finding a cure for you and so many other children. ❤️

1 week ago

$158

Enza R Leonardi

1 week ago

$56

Claudia Cimilio

1 week ago

$56

Mitch Dodd

All the best Amity

1 week ago

$56

Charlie Moussa

1 week ago

$2.01k

Bruno And Amanda Maurel

1 week ago

$500

Janette Bainou

You are a brave little girl. We are so very proud of you. Lots of love 💝

1 week ago

$53

Clare Whitelock

Best wishes for the success and help with this fundraiser.

1 week ago

$211

Anonymous

1 week ago

$53

Anonymous

1 week ago

$156

Loncare Pty Ltd

Best wishes

1 week ago

$520

Watercraftpro Watercraftpro

Godbless 🙏

2 weeks ago

$53

Matty Svinos

2 weeks ago

$520

Custom Suspension And Auto Bailey

2 weeks ago