Amity's Story

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Why I’m doing Jeans for Genes

A series of red spots on Amity’s cheek look innocent enough – but they actually reveal a more serious genetic condition that could have a devastating impact.

Amity was born happy and healthy, but it was when some little red spots on her cheek started to grow bigger that her parents Cass and Luke became worried. A dermatologist sent Amity for genetic testing – which confused her parents.

In the end Amity’s condition was so rare that it took two years for her parents to get a final diagnosis of Capillary Malformation-Arteriovenous Malformation Type 2. It impacts her capillaries and can lead to stroke.

β€œShe could end up with one enlarged vein that runs over the top of the brain that can put pressure on the brain and cause seizures, or if she has nosebleeds or headaches, then it could be the sign of a stroke,’’ Cass said. β€œIt took a while to sink in, what could happen, and it's scary.’’

In 2023 they did their first Jeans for Genes fundraiser to educate others about rare genetic conditions. They raised an extraordinary $13,000 in one week!

β€œI had an overwhelming response from friends who had no idea about Amity’s condition,’’ Luke said. β€œTo have phone calls, we’re talking grown men who would happily get on the phone and have a conversation with you and cry on the phone. It's very overwhelming. And you know, it's going towards a good cause.’’

β€œIt's a child's life – it’s the only way I could put it. This fundraising goes towards many children's lives. And it may not happen now - but it's something that could in the future help someone's child live a long life. β€˜β€™

Join me. Share this message. Donate. Thank You!

Latest updates

19 Jun 2024 by Cass Wright

Meet Amity

My Impact

So far this year I helped provide...

479

Hours of research

For every $50 raised, one hour of research is funded

Funds raised over the years

Biggest Donor

Jean-ius Donor

$5,816

Thank you so much to my biggest supporter, Amity's Big Fancy Fundraiser, for donating an incredible $5,816 to help fund vital research into curing children’s genetic diseases.

Thank you to our Sponsors

$21

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$21

Nadine Roach

2 months ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$106

Belinda Barbagallo

Wishing Amity and her family all the best!

2 months ago

$100

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$100

Jacqui

2 months ago

$211

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$211

Graham And Sharyl Jay

Wishing you a successful Fundraiser. All our love uncle Graham and Aunty Sharyl.

2 months ago

$158

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$158

Ivan Paule

2 months ago

$162

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$162

Matthew Jay

Your family loves you dearly Amity! Kee

2 months ago

$520

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$520

Francis Makerry

We love you to the moon and back Amity. God bless you, St Michael the Archangel watch over and protect you. Love Dordor and Tate xx

2 months ago

$5.82k

Amity's Big Fancy Fundraiser

2 months ago

$211

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$211

Anonymous

A worthy cause and we’re happy to support

2 months ago

$158

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$158

Anonymous

A worthy cause! We’re glad to be a part of the fundraising

2 months ago

$86

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$86

Anonymous

2 months ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$53

Susan Garrett

2 months ago

$1.11k

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$1.11k

Amity

Amitys Big Fancy Fundraiser

2 months ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$53

Pina Bernard

2 months ago

$158

Peter Zeait

May God continue to bless you and your beautiful family. We are praying for you all and hope with God grace the challenges of each day may be shared by the angels and the saints.

2 months ago

$53

Angela Cavallo

2 months ago

$317

David & Ann Yamin

Amity, wishing you all the best in your fund raising efforts. Well done!

2 months ago

$264

Anonymous

Given with faith hope and love. R+GXxx

2 months ago

$53

Penny Horsfield

Thank you so much for being our Ambassador this year! We are so grateful for your time, energy and support! We couldn't do this without all of you!

2 months ago

$91

Chris Cloumassis

2 months ago

$211

Ienco Family

2 months ago

$150

Budwi Zahia Gittani

God bless you and all.

2 months ago

$56

Maya

2 months ago

$400

Shadi & Jade

God bless you Amity

2 months ago

$317

Lh

2 months ago

$158

Anonymous

3 months ago

$86

Louise

3 months ago

$211

Anth T

3 months ago

$106

Karen Wright

Reach for the Stars Amity Love you

3 months ago

$150

David Whitbourn

3 months ago

$56

Mia F (school)

3 months ago

$56

Matched Gift

Your donation has been matched!

3 months ago

$56

Ada Wong

3 months ago

$211

Tony And Robyn Lahood

3 months ago

$91

Matched Gift

Your donation has been matched!

3 months ago

$91

Annie

πŸ’œ

3 months ago

$160

Matched Gift

Your donation has been matched!

3 months ago

$160

Lockstar Homes

Keep up the wonderful fundraising work for Jeans for genes, Amity you are a little legend πŸ₯°

3 months ago

$211

Matched Gift

Your donation has been matched!

3 months ago

$211

Daniel Dib

3 months ago

$56

Matched Gift

Your donation has been matched!

3 months ago

$56

Gemma Rheinberger

3 months ago

$110

Matched Gift

Your donation has been matched!

3 months ago

$110

Josh And Karen

Go Amity go science

3 months ago

$106

Matched Gift

Your donation has been matched!

3 months ago

$106

Edgar Soto

3 months ago

$21

Matched Gift

Your donation has been matched!

3 months ago

$21

Anonymous

3 months ago

$520

Matched Gift

Your donation has been matched!

3 months ago

$520

Greg & Kate Hunter

3 months ago

$42

Matched Gift

Your donation has been matched!

3 months ago

$42

Charlene Scicluna

3 months ago

$110

Matched Gift

Your donation has been matched!

3 months ago

$110

Sekuloski Family

Sending our love to Amity and the family.

3 months ago

$37

Matched Gift

Your donation has been matched!

3 months ago

$37

Jessica Robinson

3 months ago

$110

Milaika Carrasco

❀️❀️❀️

3 months ago

$110

Matched Gift

Your donation has been matched!

3 months ago

$110

Matched Gift

Your donation has been matched!

3 months ago

$110

Bridgette And Milaika

We love you always beautiful girl so proud of you ❀️

3 months ago

$106

Matched Gift

Your donation has been matched!

3 months ago

$106

Chantalle Samrani

3 months ago

$158

Matched Gift

Your donation has been matched!

3 months ago

$158

David Tinyow

Thanks Amity for providing care, kindness and strength to Others around you on your journey. Cheers, Dave.

3 months ago

$211

Anonymous

3 months ago

$106

James Naumcevski

3 months ago

$200

Wendy And Rami Sorial

Best wishes AmityπŸ™πŸ™

3 months ago

$100

Gisella Zehetner

Hope they find a solution soon. God bless

3 months ago

$55

Eddie Abousleiman

Best wishes, God Bless πŸ™

3 months ago

$110

Maria Buda

God Bless you Amity. May the funds raised go towards finding a cure for you and so many other children. ❀️

3 months ago

$158

Enza R Leonardi

3 months ago

$56

Claudia Cimilio

3 months ago

$56

Mitch Dodd

All the best Amity

3 months ago

$56

Charlie Moussa

3 months ago

$2.01k

Bruno And Amanda Maurel

3 months ago

$500

Janette Bainou

You are a brave little girl. We are so very proud of you. Lots of love πŸ’

3 months ago

$53

Clare Whitelock

Best wishes for the success and help with this fundraiser.

3 months ago

$211

Anonymous

3 months ago

$53

Anonymous

3 months ago

$156

Loncare Pty Ltd

Best wishes

3 months ago

$520

Watercraftpro Watercraftpro

Godbless πŸ™

3 months ago

$53

Matty Svinos

3 months ago

$520

Custom Suspension And Auto Bailey

3 months ago