Why I’m doing Jeans for Genes
A series of red spots on Amity’s cheek look innocent enough
– but they actually reveal a more serious genetic condition that could have a
devastating impact.
Amity was born happy and healthy, but it was when some
little red spots on her cheek started to grow bigger that her parents Cass and
Luke became worried. A dermatologist sent Amity for genetic testing – which
confused her parents.
In the end Amity’s condition was so rare that it took two
years for her parents to get a final diagnosis of Capillary
Malformation-Arteriovenous Malformation Type 2. It impacts her capillaries and
can lead to stroke.
“She could end up with one enlarged vein that runs over the
top of the brain that can put pressure on the brain and cause seizures, or if
she has nosebleeds or headaches, then it could be the sign of a stroke,’’ Cass
said. “It took a while to sink in, what could happen, and it's scary.’’
In 2023 they did their first Jeans for Genes fundraiser to
educate others about rare genetic conditions. They raised an extraordinary
$13,000 in one week!
“I had an overwhelming response from friends who had no idea
about Amity’s condition,’’ Luke said. “To have phone calls, we’re talking grown
men who would happily get on the phone and have a conversation with you and cry
on the phone. It's very overwhelming. And you know, it's going towards a good
cause.’’
“It's a child's life – it’s the only way I could put it.
This fundraising goes towards many children's lives. And it may not happen now
- but it's something that could in the future help someone's child live a long
life. ‘’
Join me. Share this message. Donate. Thank You!
My Impact
So far this year I helped provide...
479
Hours of research
For every $50 raised, one hour of research is funded
Funds raised over the years
Biggest Donor
Jean-ius Donor
$5,816
Thank you so much to my biggest supporter, Amity's Big Fancy Fundraiser, for donating an incredible $5,816 to help fund vital research into curing children’s genetic diseases.
Thank you to our Sponsors
$21
Matched Gift
Your donation has been doubled by our sponsors!
$21
Nadine Roach
$106
Matched Gift
Your donation has been doubled by our sponsors!
$106
Belinda Barbagallo
Wishing Amity and her family all the best!
$100
Matched Gift
Your donation has been doubled by our sponsors!
$100
Jacqui
$211
Matched Gift
Your donation has been doubled by our sponsors!
$211
Graham And Sharyl Jay
Wishing you a successful Fundraiser. All our love uncle Graham and Aunty Sharyl.
$158
Matched Gift
Your donation has been doubled by our sponsors!
$158
Ivan Paule
$162
Matched Gift
Your donation has been doubled by our sponsors!
$162
Matthew Jay
Your family loves you dearly Amity! Kee
$520
Matched Gift
Your donation has been doubled by our sponsors!
$520
Francis Makerry
We love you to the moon and back Amity. God bless you, St Michael the Archangel watch over and protect you. Love Dordor and Tate xx
$5.82k
Amity's Big Fancy Fundraiser
$211
Matched Gift
Your donation has been doubled by our sponsors!
$211
Anonymous
A worthy cause and we’re happy to support
$158
Matched Gift
Your donation has been doubled by our sponsors!
$158
Anonymous
A worthy cause! We’re glad to be a part of the fundraising
$86
Matched Gift
Your donation has been doubled by our sponsors!
$86
Anonymous
$53
Matched Gift
Your donation has been doubled by our sponsors!
$53
Susan Garrett
$1.11k
Matched Gift
Your donation has been doubled by our sponsors!
$1.11k
Amity
Amitys Big Fancy Fundraiser
$53
Matched Gift
Your donation has been doubled by our sponsors!
$53
Pina Bernard
$158
Peter Zeait
May God continue to bless you and your beautiful family. We are praying for you all and hope with God grace the challenges of each day may be shared by the angels and the saints.
$53
Angela Cavallo
$317
David & Ann Yamin
Amity, wishing you all the best in your fund raising efforts. Well done!
$264
Anonymous
Given with faith hope and love. R+GXxx
$53
Penny Horsfield
Thank you so much for being our Ambassador this year! We are so grateful for your time, energy and support! We couldn't do this without all of you!
$91
Chris Cloumassis
$211
Ienco Family
$150
Budwi Zahia Gittani
God bless you and all.
$56
Maya
$400
Shadi & Jade
God bless you Amity
$317
Lh
$158
Anonymous
$86
Louise
$211
Anth T
$106
Karen Wright
Reach for the Stars Amity Love you
$150
David Whitbourn
$56
Mia F (school)
$56
Matched Gift
Your donation has been matched!
$56
Ada Wong
$211
Tony And Robyn Lahood
$91
Matched Gift
Your donation has been matched!
$91
Annie
💜
$160
Matched Gift
Your donation has been matched!
$160
Lockstar Homes
Keep up the wonderful fundraising work for Jeans for genes, Amity you are a little legend 🥰
$211
Matched Gift
Your donation has been matched!
$211
Daniel Dib
$56
Matched Gift
Your donation has been matched!
$56
Gemma Rheinberger
$110
Matched Gift
Your donation has been matched!
$110
Josh And Karen
Go Amity go science
$106
Matched Gift
Your donation has been matched!
$106
Edgar Soto
$21
Matched Gift
Your donation has been matched!
$21
Anonymous
$520
Matched Gift
Your donation has been matched!
$520
Greg & Kate Hunter
$42
Matched Gift
Your donation has been matched!
$42
Charlene Scicluna
$110
Matched Gift
Your donation has been matched!
$110
Sekuloski Family
Sending our love to Amity and the family.
$37
Matched Gift
Your donation has been matched!
$37
Jessica Robinson
$110
Milaika Carrasco
❤️❤️❤️
$110
Matched Gift
Your donation has been matched!
$110
Matched Gift
Your donation has been matched!
$110
Bridgette And Milaika
We love you always beautiful girl so proud of you ❤️
$106
Matched Gift
Your donation has been matched!
$106
Chantalle Samrani
$158
Matched Gift
Your donation has been matched!
$158
David Tinyow
Thanks Amity for providing care, kindness and strength to Others around you on your journey. Cheers, Dave.
$211
Anonymous
$106
James Naumcevski
$200
Wendy And Rami Sorial
Best wishes Amity🙏🙏
$100
Gisella Zehetner
Hope they find a solution soon. God bless
$55
Eddie Abousleiman
Best wishes, God Bless 🙏
$110
Maria Buda
God Bless you Amity. May the funds raised go towards finding a cure for you and so many other children. ❤️
$158
Enza R Leonardi
$56
Claudia Cimilio
$56
Mitch Dodd
All the best Amity
$56
Charlie Moussa
$2.01k
Bruno And Amanda Maurel
$500
Janette Bainou
You are a brave little girl. We are so very proud of you. Lots of love 💝
$53
Clare Whitelock
Best wishes for the success and help with this fundraiser.
$211
Anonymous
$53
Anonymous
$156
Loncare Pty Ltd
Best wishes
$520
Watercraftpro Watercraftpro
Godbless 🙏
$53
Matty Svinos
$520
"Your donation has been doubled by our sponsors!"