As most of you know already my little nephew Xavier has Dravet Syndrome. He battles this terrible form of epilepsy every day, every minute, every second. Xavier’s seizures are triggered by heat, exertion, illness, sleep deprivation, being startled, and by direct and reflective light. To say this is completely devastating is an understatement. I often feel like I can’t do anything to help my beautiful brother his beautiful wife and my amazing nephew Elijah and niece Zoe so I will do what I can again and raise some money to hopefully one day find a cure for this debilitating disease.
I’ve signed up to Sofa to 6km, so I can raise awareness and start the conversation—we need to do all we can to help save more kids’ lives. Can you help by sharing this message with the people you know and asking them to donate too?
There’s lots of work to do, but there is also lots of hope.
Join me. Share this message. Donate. Thank You!
My Impact
So far this year I helped provide...
22
Hours of research
For every $55 raised, one hour of research is funded
Thank you to our Sponsors
$127
St Paul’s Lutheran Kindergarten
Great work 🤩
$16
Ilaria Carini
Great cause!
$91
Nicole Mcfarlane
Go girl!!!!!!!
$20
Matt And Niki Marnell
$21
Kate Sharp
Great work!
$31
Deb Jennings
Amanda, good luck! Xavier is very lucky to have someone special like you in his life xxxx
$53
David Case
Donation to Xavier
$211
Torquay Larder
Well done. Love from the Poveys
$110
Craig
$52
Craig, Tay & Fam Niles
$21
Tippett Family
Good effort mate. All for such a great cause so dear to your families hearts.
$106
Beccy Churchill
$90
Leonie Mahar
$110
Kerry Carln
Well done for our little man Xavier.
$55
Amy Walve
$108
"Great work 🤩"