Alex’s Fundraiser

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Why I'm doing Jeans for Genes

Alex is one special boy –he is one of only four children in Australia with a genetic condition known as Nicolaides Baraitser Syndrome. He has intellectual disability, low muscle tone and growth issues – but the main concern is epilepsy.

Donate now to make a difference for kids like Alex.

Latest updates

23 Jun 2021 by Alex P

Thank you!

Thank you all so much for all your support! Your donations, page shares and above all your messages and kind words are so appreciated! 

Latest donations

$ 53

Anthea donated at today

$ 31.32

Anna Georgas donated at today

"Well done to you all 💙"

$ 20.88

Michele Black donated at today

$ 108.58

Jackson Rudolph donated at today

"We love seeing your smile 🥰🥰🥰"

$ 55.33

Maribeth Caburian donated at today

"Great work and well done!"

$ 55.33

Lauren Trenear donated at today

$ 108.58

Leila Matar donated at today

"Go team Alex! Keep smiling, kiddo! x"

$ 52.20

Kelly Gambrellis donated at today

"We love you Alex!!"

$ 20.88

Laurie Lesmond donated at today

$ 108.58

Papadatos Family donated at 2 days ago

"Well done Alex, your a super star!"

$ 108.58

John Berry donated at 2 days ago

"You rock, Alex!"

$ 50

Ivy Chapman donated at 3 days ago

"I love you Alex!"

$ 200

Adam And Pauline Pankau donated at 3 days ago

"Hi, We are so happy to support your fund raising for this great cause. Kind regards Adam and Pauline Pankau"

$ 55.33

Julie-anne Morgan donated at 4 days ago

"Allie and Lara… you’re such an inspirational family. Happy to contribute and offer support. With much love to you all."

$ 55.33

Dalal Gibara donated at 4 days ago

"Wish all the best of luck and health beautiful Alex"

$ 100

Angela Pastura donated at 4 days ago

"From Nonna Angela xxx"

$ 104

Bowlarama Wetherill Park donated at 4 days ago

"Alessandro!"

$ 108.58

Belinda Firman donated at 5 days ago

$ 20.88

Anonymous donated at 5 days ago

"Hope you keep raising more My nephew had a genetic #DEBRA 🦋 if you look it up God Bless he is not with us anymore But if just one person puts there hand into there account and donates It can change things we need Drs to study to find cures anything little bit would help 💕 Good luck Alex hope you raise lots of money"

$ 108.58

Kris Mclennan donated at 5 days ago

$ 20.88

Tina Iacono donated at 5 days ago

"Well done Alex. You are a shining joy to us all 💙"

$ 55.33

Vanessa Wong donated at 5 days ago

$ 55.33

Jaclyn Bates donated at 5 days ago

"Thank you for sharing Alex’s story."

$ 104

Iona Flett donated at 5 days ago

$ 50

Biljana Dumevska donated at 5 days ago

"Keep on smiling that beautiful big smile Alex"

$ 89.78

Linda Batman donated at 5 days ago

$ 55.33

Jo Parmagos donated at 5 days ago

"Alex!! the boy with the best smile I've ever seen. God bless you all and Thankyou ❤🙏"

$ 50

Omar Chami donated at 5 days ago

$ 55.33

Helen Karidakis donated at 5 days ago

"I have the pleasure of knowing Alex and his beautiful family. I remember the day I saw on Facebook what had happened in Italy and just hearing it again brought so many emotions back but through it all Alex has always had the most infectious smile on his face. He really brightens up the day"

$ 50

Rose And Nebe Cirignano donated at 6 days ago

$ 26.10

Val Hull donated at 6 days ago

$ 20.88

Nikita donated at 6 days ago

"♥️♥️♥️"

$ 57

Family Chahrozian donated at 6 days ago

$ 55.33

Sally Costigan donated at 6 days ago

"For Wonderful Alex"

$ 261

Gemma donated at 6 days ago

$ 108.58

Maureen Welsh donated at 6 days ago

$ 55.33

Anonymous donated at 6 days ago

"Forza Alex"

$ 500

A&e Holdings donated at 6 days ago

$ 208.80

Emma & Andrew Chapman donated at 6 days ago

$ 108.58

Emilia Rozmus donated at 1 week ago

"From Babcia"

$ 52.20

Marie Pirozzi donated at 1 week ago

"❤️"

$ 108.58

Irena Michael Lombardi donated at 1 week ago

"❤️"

$ 104

Karina White donated at 1 week ago

"We are all on your team Alex! Xxx"

$ 108.58

Nick G donated at 1 week ago

$ 104

Graham White donated at 1 week ago

$ 55.33

Carol And Laurie Dapice donated at 1 week ago

$ 31.32

Erin Webley donated at 1 week ago

$ 36.54

Lee, Michelle And Your Ncbrs Buddy Callum In The Uk donated at 1 week ago

"Great work Alex, your doing such an amazing thing spreading awareness of NCBRS and all rare conditions. Good luck 🧡💚💙🧬🌍"

$ 20.88

Gail Hargreaves donated at 1 week ago

"Keep fighting"

$ 250

Joanna Lyons donated at 1 week ago

"Love to you and your amazing family xx"

$ 55.33

True North Design & Drafting Pty Ltd donated at 1 week ago

"For Alex ❤️ Valentina"

$ 108.58

Mirta Murphy donated at 1 week ago

"Good luck Alex. Keep smiling. 😊"

$ 53

Jayne B donated at 1 week ago

"Good luck Alex!"

$ 20.88

Alisha Jacobs donated at 1 week ago

"For our mate Alex - #DonatingToMakeADifference"

$ 86

J Robertson donated at 1 week ago

"What a gorgeous smile you have Alex. Good luck with your fund raising!"

My Achievements

Created a Team

Reached 25% of fundraising target

Reached 50% of fundraising target

Reached 75% of fundraising target

Reached 90% of fundraising target

Reached 100% of fundraising target

Set a higher target for myself

Made a self-donation

Shared on social media

Uploaded Profile Picture

Received 5 donations

Updated Blog