Every parent knows the joy of their firstborn hitting milestones, like walking and talking– but for Lucy and Peter, it is something they may never experience.
“I felt kind of overwhelmed at first,’’ dad, Peter, said. “It took me a while to realise the gravity of it all. And then as he progressed in age, every milestone he missed really hit me in a different way.’’
Lucy and Peter’s two-year-old son Teddy is one of the faces of the 2023 Jeans for Genes campaign which raises funds for the vital work being done in the labs at Children’s Medical Research Institute.
At five months old, Teddy was diagnosed with CTNNB1 syndrome, a genetic condition that occurs randomly and is not usually inherited. It is a neurodevelopmental disorder similar to cerebral palsy that has physical, mental, and emotional challenges. His parents were told that Teddy may never walk or talk.
“You just love your kids, no matter what. We had all the genetic testing you can get while you're pregnant, and I didn't plan to have a child with a disability, but it happened, and you just move on.
“He's a joy, and I don't really know any different than taking my son to therapy every day. It's just reality for us.’’
Latest updates
Overwhelmed by your support!
We would like to extend a HUGE THANK YOU to everyone who has generously donated to the Children's Medical Research Institute on Teddy's behalf. We are so lucky to have the love and support of such an incredible community of friends and family.Please enjoy this photo of Teddy's reaction to your donations!
Lots of love,
My Impact
So far this year I helped provide...
407
Hours of research
For every $55 raised, one hour of research is funded
Thank you to our Sponsors
$675
Jan & John Witney
Donation via whiskey auction
$5.3k
Teddy's Fundraiser
$211
Carolyn Foxton
$91
Carolyn And Mark
Go team Teddy. We love you more than words can say.
$56
Alicia Kenyon
$110
Jeans For Genes
Your donation has been doubled
$110
Liz Sandwith
You truly are an inspirational family! 💙
$56
Jeans For Genes
Your donation has been doubled
$56
Natalie, Leroy, Romeo Munoz Soto
$21
Jeans For Genes
Your donation has been doubled
$21
Anonymous
$56
Jeans For Genes
Your donation has been doubled
$56
Em J
$315
Jeans For Genes
Your donation has been doubled
$315
Lucy Mort
$56
Jeans For Genes
Your donation has been doubled
$56
Nicholas Skapetis
$5k
Jeans For Genes
Your donation has been doubled
$5k
Tall Order Electrical Pty Ltd
We are delighted to donate as the major sponsor of Teddy's Drinks & Denim Fundraiser!
$105
Emma Rowlison
$105
Jeans For Genes
Your donation has been doubled
$26
Jeans For Genes
Your donation has been doubled
$26
Lauren Taylor
$110
Jeans For Genes
Your donation has been doubled
$110
Alex Sandwith
$21
Bridgette Wright
You guys have raised so much! Well done teddy! All the best
$158
Wendy Hagney
Sorry I can't be there in person on this occasion. I sure your special afternoon will be a great success.
$56
Karen Wright
$31
Janvi A Vakil
$110
Stefan Hamerlok
$53
Suresh Suwal
$110
Jordyn Havard
$110
Benjamin Nair
$211
Anonymous
$100
Altogether Group
As a sustainable neighborly company, we deeply value the importance of community and believe in the power of collective action. Your efforts in organizing this fundraiser not only showcase your dedication but also inspire others to come together for a meaningful cause. May this event be a resounding success, surpassing all expectations, and making a significant impact on those in need. We applaud your commitment and hard work and stand alongside you in creating a better world.
$50
May & Luca
💙 💙 💙
$104
Michelle Dudack
Such a fantastic charity Lucy & Peter! Teddy is just adorable 😊 hope you raise lots of money. Sending lots of love 💙
$55
Wendy May
$11
Belinda Cappai
$21
Brian Richards
$520
Nana
For my little champion
$53
Sonia Mastoras
$56
Suphansa Migallo
Wishing you all the best Teddy! ❤️
$26
Wendy Mcnamara
$32
Karen Igoe
$56
Prof. Potts
$25
Facebook Donation
$110
Scott & Natalie Pendergast
We love Teddy ❤️
$106
Canty Family
In support of a wonderful cause
$37
Jen D
$105
Sandra Esber
$110
Taren Sanders
$32
Alesha
$52
Elizabeth
I hope you guys reach your goal xx
$56
Cameron Glynn
$110
Lisa Casey
$55
Kelsey Best
Teddy is a little man filled with so much joy, his smiles brighten up the world. We are all very lucky to know him. Shoutout to his incredible parents.
$53
Darcy Batterham-love
Awesome cause, go Lucy, Peter and Teddy!
$250
Viveik Vinoharan
Love you guys 🥰
$110
Virginia Leighton
Love you Teddy Lucy and Peter.
$110
Hugo De Vries
$50
Justine Harvey
So hopefully one day we can hear Teddy sing his own songs x
$32
Anne
More music for Teddy
$110
Ange
Our beautiful nephew, we love you 💙
$211
Emily
my world
$106
Thomas Mcdermott
$50
Hannah Mcgrory
🤍
$500
Anonymous
For our beautiful boy who deserves the world!
"Donation via whiskey auction"