Did you know that
1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom!
This August, Team Allan are taking on the
Ks for Kids challenge - walking to raise funds for
Children’s Medical Research Institute, supporting scientists who are working today to find cures for tomorrow.
We know first hand how important this research is. We lost our first born Riley Cate to a rare genetic disease in 2004. She was born March 17th 2002 and was doing well, but when going to a routine check up we noticed she wasn't meeting her milestones and we knew something wasn't quite right. After numerous tests she was diagnosed with a rare disorder called GM1 Gangliosidosis, being a recessive disorder she would lose the ability to do most thing like eating, talking, walking, crawling, sitting up and eventually her body would shut down. We cherished 2 magical years with Riley and are grateful every day that she chose us to be her family. 21 years on, and we miss her dearly, but know we gave her the best chance to enjoy her short life.
We are walking to Ks in August in memory of our LITTLE RAY OF SUNSHINE and to raise funds for research into rare Genetic Diseases that will help keep labs running, research advancing, and hope alive for kids who need it most.
Every step we take is for them. Your donation will help us go the distance and fund vital research!
Did you know that 1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom!
This August, Team Allan are taking on the Ks for Kids challenge - walking to raise funds for Children’s Medical Research Institute, supporting scientists who are working today to find cures for tomorrow.
We know first hand how important this research is. We lost our first born Riley Cate to a rare genetic disease in 2004. She was born March 17th 2002 and was doing well, but when going to a routine check up we noticed she wasn't meeting her milestones and we knew something wasn't quite right. After numerous tests she was diagnosed with a rare disorder called GM1 Gangliosidosis, being a recessive disorder she would lose the ability to do most thing like eating, talking, walking, crawling, sitting up and eventually her body would shut down. We cherished 2 magical years with Riley and are grateful every day that she chose us to be her family. 21 years on, and we miss her dearly, but know we gave her the best chance to enjoy her short life. We are walking to Ks in August in memory of our LITTLE RAY OF SUNSHINE and to raise funds for research into rare Genetic Diseases that will help keep labs running, research advancing, and hope alive for kids who need it most.
Every step we take is for them. Your donation will help us go the distance and fund vital research!
