Joseph's Story

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Why I’m doing Jeans for Genes

When young parents Sarah and Carmelo learned their child had a genetic condition, they feared for his future – but when they discovered what medical research is doing about it, they gained new hope.

Sarah and Carmelo were first time parents when Joseph was born. He didn’t feed or sleep well but his parents didn’t worry too much until they got a call about his newborn screening results.

“When you get a phone call from the paediatrician saying, ‘your son is testing very high for cystic fibrosis’ the first thing you do is Google it,’’ Carmelo said. “And when you type in ‘what is cystic fibrosis’, and it  says you have a life expectancy of around 25 years… The first thing I did was burst into tears and threw up.’’

But medication exists to treat patients with cystic fibrosis, and luckily for Joseph, he has only ever been hospitalised once. He does require daily treatment and must avoid high risk environments.

Hope has grown even more as the family heard about CMRI’s research on gene therapy for CF. This could mean that one day a simple injection could provide a cure.

“We're the lucky ones, I guess. There are other kids that are way more sick,” Carmelo said. “And when we went to the Jeans for Genes research facility and learned about gene therapy – it’s amazing to think that not only could it help Joseph and kids with cystic fibrosis, but a lot of other genetic diseases.

“When you donate to Jeans for Genes you are not just curing one disease – you could be curing many.’’

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Latest updates

19 Jun 2024 by Sarah Cisca

Meet Joseph

My Impact

So far this year I helped provide...

802

Hours of research

For every $50 raised, one hour of research is funded

Funds raised over the years

Biggest Donor

Jean-ius Donor

$5,420

Thank you so much to my biggest supporter, St Joseph's Catholic Primary School Enfield, for donating an incredible $5,420 to help fund vital research into curing children’s genetic diseases.

Thank you to our Sponsors

$56

Carlo & Betty Di Pasqua

Joseph, you are such an inspiration. May God bless you always x

3 months ago

$38

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$38

Anonymous

❤️

4 months ago

$1.5k

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$1.5k

Salter Brother’s Stephen Cossetto

4 months ago

$158

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$158

Cathy And Louis Salvagio

You are doing a fabulous job Joseph! You are a gorgeous boy.

4 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$56

Vito Salvagio

Great work to you Joseph and the family xx

4 months ago

$91

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$91

Lauren Tavener

4 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$56

Kellie Chapman

Sending butterflies your way

4 months ago

$21

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$21

Danielle Dixon

Thank you so much! An incredible day and cause!

4 months ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$110

Liana Duarte Mascaro

Thank you so much! Happy to support 💛💛

4 months ago

$5.42k

St Joseph's Catholic Primary School Enfield

4 months ago

$5.42k

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$56

Lucas Nogueira

4 months ago

$317

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$317

Siena Frino

So proud of my big cousin.

4 months ago

$200

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$200

Giannis Motor Mechanic

4 months ago

$104

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$104

Cutrupi Family

We’re so proud of you Joseph! Keep up the awesome work Melo and Sarah! We love you all x

4 months ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$106

Pronprohm Thai Restaurant

We love you Joseph

4 months ago

$86

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$86

Alex & Jess

Proud of you Joseph 💙

4 months ago

$520

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$520

Robinson Y Gabriela

TQM amigo. Together forever 🥰

4 months ago

$1.52k

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$1.52k

Carmelo, Sarah & Cristian Cisca

To our very own superhero! We are so proud of you! The more awareness we raise, the more research is done and the closer we are to finding a cure. We love you so much! Love Dad, Mum and Cristian

4 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$56

Pauline, Silas & The Boys

Sarah & Melo the unconditional support you show for Joseph is amazing and his strength and resilience is a true testament to how you have raised him. Keep doing what you doing and we’ll all keep praying for a cure. 😘

4 months ago

$320

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$320

Luca

4 months ago

$32

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$32

Tegan Kanard

Thank you for being so brave, beautiful Cisco family!!

4 months ago

$520

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$520

Uncle Mickey

Joseph our superhero

4 months ago

$158

Carmelina

Shine bright little man.. let's find a cure ♥️♥️

4 months ago

$158

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$106

Anna & Vince Pip

Good work Joseph keep it up Love you 🥰🥰🥰🥰

4 months ago

$500

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$500

Gina & Angelo D’aquino

We are very proud of you Joseph, you are a special and wonderful boy and we love you very much. Lots of love Zia Gina & Angelo D’Aquino

4 months ago

$1,000

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$1,000

Epi Electrical Team (pipio Family)

You’re a champion Joseph. Stay strong

4 months ago

$520

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$520

Ivory Estate Agents

to Joseph and all children going through a rough time, just know your are not alone and we will fight with you and find a cure for cystic fibrosis'.

4 months ago

$1.02k

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$1.02k

Barista Vs Chef

We love you so much Joseph keep defying the odds and being a role model not only to your brother and cousins but for all kids 💙 Lots of love Carmelo, Massimo, Livia BVC team

4 months ago

$317

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$317

Magda Pizzolato

Well done Joseph you truly are a beautiful boy so proud of you. Lots of love from The Pizzo’s

4 months ago

$1.52k

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$1.52k

Rebecca Newbury

For our beautiful super hero we love you beyond measure and are so proud to be part of your beautiful life love Eddie Bec Robinson and Gabriela The Ahumadas

4 months ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$53

Amy D’angola

❤️

4 months ago

$1.02k

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$1.02k

Joe & Nancy Cisca

Joseph, our superhero. Real heroes don’t wear capes…So proud of you and your Mum & Dad. Nonno & Nonna Love you to infinity and beyond xxx

4 months ago

$20

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$20

Monaco Family (luisa And Anthony's Friends)

4 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$56

Kyra

4 months ago

$86

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$86

Anonymous

4 months ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$110

Emmanuel & Elijah T

We’re so proud of you our buddy Joseph!

4 months ago

$11

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$11

Anonymous

4 months ago

$5

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$5

Anonymous

4 months ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$53

Iain Laughland

Go Joseph!! 👍👍

4 months ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$50

Mel De Groot

4 months ago

$11

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$11

Sarah Ryken

4 months ago

$1.02k

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$1.02k

L & A Alloggia Family

Joseph you are a strong boy and we love you xx

4 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$56

Alexander Wong

4 months ago

$56

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$56

Sarah Jones

4 months ago

$32

Maria Kotronakis

4 months ago

$32

Matched Gift

Your donation has been doubled by our sponsors!

4 months ago

$56

Anonymous

4 months ago

$11

Erin L

4 months ago

$56

Jenny Crane Crane

4 months ago

$11

Jesse Gee

4 months ago

$56

Anonymous

4 months ago

$11

Bridget When

4 months ago

$26

Anonymous

4 months ago

$21

Emile Carre

4 months ago

$5

Anonymous

4 months ago

$5

Angelina Ferro

4 months ago

$5

Anonymous

4 months ago

$21

Beau Booth

Stay strong little man 💙

4 months ago

$21

Sam G

4 months ago

$211

Fred’s Bagels & Bread (bishara)

It was lovely to hear your story Carmello and Sarah . Joseph you are a champion and a star and you are an inspiration to all of us . We need more people to donate to this great cause for gene therapy . love from Your Fred’s Bagels family

4 months ago

$111

Brenton Barker

Real hero’s!

4 months ago

$106

Angela Crespin

Such a great cause. Thanks for sharing your beautiful boys story.

4 months ago

$110

Anonymous

4 months ago

$108

Anonymous

Such an inspiring little man 💙

4 months ago

$26

Jude (carri & Mel’s Friend)

4 months ago

$56

Keti Naumovski

Thank you for sharing your story with us Joseph! So brave and so inspirational :)

4 months ago

$110

Carmelo And Carri D’aquino

Love you Joseph, we are so proud of you. Melo, Carri, Tom, Will and Arabella. Xx

4 months ago

$53

Claire Chin

It was amazing to hear about Joseph’s story today. So inspiring and reminds us how we have the opportunity to give to amazing causes.

4 months ago

$158

Antony Frino

Keep doing us proud our Super Hero Joseph

4 months ago

$158

T L

You're a superstar Joseph! And very inspiring to hear your story Sarah and Carmelo

4 months ago

$55

Vanessa

❤️

4 months ago

$89

Mr & Mrs Elmowy

5 months ago

$162

Dean Burrello

5 months ago

$110

Luisa And Anthony Sirianni

5 months ago