Jett's Fundraiser

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Jett’s Story: From Diagnosis To Hope

When Beth and Brad learned their newborn baby Jett had profound hearing loss, they were devastated. But what came next was even harder.Ā 

After further testing, Jett was diagnosed with Usher Syndrome Type 1 — a rare genetic condition that affects hearing, balance, and vision.Ā 

At just a few months old, Jett received cochlear implants to help him hear. But the syndrome meant he was also facing serious balance issues, frequent falls, and the devastating likelihood of being legally blind by age 18.Ā 

Despite this, his parents have found hope through science.Ā 

With the support of Usher Kids Australia, Beth and Brad were connected to Children’s Medical Research Institute, where Associate Professor Anai Gonzalez Cordero is pioneering gene therapy for Usher Syndrome. One injection could one day repair the faulty gene and protect children like Jett from losing their vision.Ā 

Beth and Brad donated Jett’s blood to help with this research.Ā 

ā€œIn his lifetime, we hope there is something that he can do to help prevent his vision loss,ā€ Beth said.Ā 

You can help make that future a reality.Ā 

Donate now and help fund the research that gives kids like Jett hope for a brighter future.

Funds raised over the years

Biggest Donor

Jean-ius Donor

$520

Thank you so much to my biggest supporter, Babylon Security, for donating an incredible $520 to help fund vital research into curing children’s genetic diseases.

Raised so far

With your help, I have raised...

$4,101

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Babylon Security

$520

Thank you so much to my biggest supporter, Babylon Security, for donating an incredible $520 to help fund vital research into curing children’s genetic diseases.

My Impact

So far this year, I've helped fund...

82

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to my donors

$158

Jasmine Antonakis

Jett you are an inspiration to us all your infectious smile and resilience never ceases to amaze me. I’m so proud of how far you have come🄰

7 hours ago

$54

The Brett Family

21 hours ago

$53

Jeff & Fiona Gilchrist

1 day ago

$264

Jennifer Morgan

Granma n Grandpa love you Jetty- our hope is for successful research to prevent vision impairment.

1 day ago

$110

Darren Trotter

4 days ago

$23

Ruth Hawkins

4 days ago

$33

Anonymous

4 days ago

$110

Hypex Group

4 days ago

$56

Gervaise

Best wishes to Jett and family. I hope a cure is found ASAP to give children with Ushers a better future.

1 month ago

$420

Anonymous

1 month ago

$110

Amy And Kris

This is awesome - so proud of everything you are doing!

1 month ago

$200

Roy Halabi

2 months ago

$211

Jayanta Bhattacharya

2 months ago

$110

Isabella Mccarthy

So proud of our handsome page boy! We love you so much Jetty xxx

2 months ago

$264

Rubal Walia

Best wishes!

2 months ago

$520

Babylon Security

2 months ago

$211

Kpmg

2 months ago

$28

Kris Blacka

Never loose your spark Jett!

2 months ago

$23

Sue Knoke

2 months ago

$23

K Davo

Beautiful boy, beautiful family

2 months ago

$104

David Mccarthy

2 months ago

$57

Sue Wootton

To a brave boy and his wonderful family

2 months ago

$110

Jo, John, Luke & Liam Bailey

Watching grow from a little baby into a funny, happy, adventurous boy is a delight! You’re a good mate to Luke and he loves seeing you at school everyday!

2 months ago

$23

Olivia Sorensen

2 months ago

$56

Bettina Fifer

2 months ago

$110

Veronique Harrison

2 months ago

$211

Liz And John Mccarthy

Jett is my brave, caring, strong willed, loveable next door neighbour. Never give up finding a cure for Usher Syndrome.

2 months ago

$33

Williamsons

Go Jetty we love you

2 months ago

$54

Carly Bartlett

2 months ago

$54

Monique Roberts

You are such a strong determined boy jett & you have the whole world in front of you I believe they will find a cure & help ensure you keep your sight & hearing Your destined for incredible things šŸ’•šŸ«¶šŸ¼

2 months ago

$54

Buchanan Family

2 months ago

$53

Lenny Swain

Great work Jett.

2 months ago

$33

Tiger Navia

Well done for raising awareness Jett! You are a legend! And your mum and dad are pretty cool too šŸ’™

2 months ago

$57

Georgia Weston

2 months ago

$110

Pete Brown

2 months ago