Jett's Fundraiser

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Jett’s Story: From Diagnosis To Hope

When Beth and Brad learned their newborn baby Jett had profound hearing loss, they were devastated. But what came next was even harder.Ā 

After further testing, Jett was diagnosed with Usher Syndrome Type 1 — a rare genetic condition that affects hearing, balance, and vision.Ā 

At just a few months old, Jett received cochlear implants to help him hear. But the syndrome meant he was also facing serious balance issues, frequent falls, and the devastating likelihood of being legally blind by age 18.Ā 

Despite this, his parents have found hope through science.Ā 

With the support of Usher Kids Australia, Beth and Brad were connected to Children’s Medical Research Institute, where Associate Professor Anai Gonzalez Cordero is pioneering gene therapy for Usher Syndrome. One injection could one day repair the faulty gene and protect children like Jett from losing their vision.Ā 

Beth and Brad donated Jett’s blood to help with this research.Ā 

ā€œIn his lifetime, we hope there is something that he can do to help prevent his vision loss,ā€ Beth said.Ā 

You can help make that future a reality.Ā 

Donate now and help fund the research that gives kids like Jett hope for a brighter future.

Funds raised over the years

Biggest Donor

Jean-ius Donor

$520

Thank you so much to my biggest supporter, Babylon Security, for donating an incredible $520 to help fund vital research into curing children’s genetic diseases.

Raised so far

With your help, I have raised...

$2,510

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Babylon Security

$520

Thank you so much to my biggest supporter, Babylon Security, for donating an incredible $520 to help fund vital research into curing children’s genetic diseases.

My Impact

So far this year, I've helped fund...

50

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to my donors

$211

Jayanta Bhattacharya

17 hours ago

$110

Isabella Mccarthy

So proud of our handsome page boy! We love you so much Jetty xxx

17 hours ago

$264

Rubal Walia

Best wishes!

17 hours ago

$520

Babylon Security

17 hours ago

$211

Kpmg

17 hours ago

$28

Kris Blacka

Never loose your spark Jett!

1 week ago

$23

Sue Knoke

1 week ago

$23

K Davo

Beautiful boy, beautiful family

1 week ago

$104

David Mccarthy

1 week ago

$57

Sue Wootton

To a brave boy and his wonderful family

1 week ago

$110

Jo, John, Luke & Liam Bailey

Watching grow from a little baby into a funny, happy, adventurous boy is a delight! You’re a good mate to Luke and he loves seeing you at school everyday!

1 week ago

$23

Olivia Sorensen

2 weeks ago

$56

Bettina Fifer

2 weeks ago

$110

Veronique Harrison

2 weeks ago

$211

Liz And John Mccarthy

Jett is my brave, caring, strong willed, loveable next door neighbour. Never give up finding a cure for Usher Syndrome.

2 weeks ago

$33

Williamsons

Go Jetty we love you

2 weeks ago

$54

Carly Bartlett

2 weeks ago

$54

Monique Roberts

You are such a strong determined boy jett & you have the whole world in front of you I believe they will find a cure & help ensure you keep your sight & hearing Your destined for incredible things šŸ’•šŸ«¶šŸ¼

2 weeks ago

$54

Buchanan Family

2 weeks ago

$53

Lenny Swain

Great work Jett.

2 weeks ago

$33

Tiger Navia

Well done for raising awareness Jett! You are a legend! And your mum and dad are pretty cool too šŸ’™

2 weeks ago

$57

Georgia Weston

2 weeks ago

$110

Pete Brown

2 weeks ago