Jett's Fundraiser

When Beth and Brad learned their newborn baby Jett had profound hearing loss, they were devastated. But what came next was even harder. 

After further testing, Jett was diagnosed with Usher Syndrome Type 1 — a rare genetic condition that affects hearing, balance, and vision. 

At just a few months old, Jett received cochlear implants to help him hear. But the syndrome meant he was also facing serious balance issues, frequent falls, and the devastating likelihood of being legally blind by age 18. 

Despite this, his parents have found hope through science. 

With the support of Usher Kids Australia, Beth and Brad were connected to Children’s Medical Research Institute, where Associate Professor Anai Gonzalez Cordero is pioneering gene therapy for Usher Syndrome. One injection could one day repair the faulty gene and protect children like Jett from losing their vision. 

Beth and Brad donated Jett’s blood to help with this research. 

“In his lifetime, we hope there is something that he can do to help prevent his vision loss,” Beth said. 

You can help make that future a reality. 

Donate now and help fund the research that gives kids like Jett hope for a brighter future.