james Reti

100 Skips a Day

My Skipping Progress

Total Skips

3,200 Skips

Goal

3,100 Skips

100% Complete
I'm doing 100 Skips a Day for Adeline and children like her.

Dear friends, family, and community,

My friends Anna and Michael with their beloved daughter Adeline carry more courage in their hearts than Iโ€™ve ever seen. At nearly five years old, Adeline has never experienced a seizureโ€‘free day. Since that terrifying moment two weeks after birth, sheโ€™s lived with relentless, refractory epilepsy, severe seizures that defy treatment. She cannot sit, stand, walk, talk, or use her hands. Her vision is silenced by cortical visual impairment, and she needs loving care for every action, every breath, every moment.

Adeline lives with CDKL5 deficiency disorder (CDD), one of the most devastating forms of genetic epilepsy. It arises from a spontaneous mutation affecting a gene crucial for brain and neuron development. There is no cure, but there is hope.ย ย ย 

In 2023, I took on the โ€œ100 Skips a Day in Augustโ€ challenge and raised $5,000 for the Childrenโ€™s Medical Research Institute (CMRI). Now, in 2025, Iโ€™m skipping again, committed to honoring every precious moment Adeline has and supporting cuttingโ€‘edge gene therapy research that could change the future for children with CDD.ย ย 

While treatments like ganaxolone offer symptomatic relief, and are now FDA and EMA approved (since Marchโ€ฏ2022 and Julyโ€ฏ2023), true cures remain in development. Preclinical work on gene replacement therapies (such as Ultragenyxโ€™s UX055 and others) shows encouraging early results, but clinical trials may still be years away.ย ย ย 

Every skip you make, every share, every dollar donated brings us one step closer. Even if Adeline may not yet benefit directly in her lifetime, thereโ€™s a chance that another child tomorrow will. That possibility alone is worth everything.

Join me this August!

Skip 100 times a day. Share our story. Donate what you can.

No gesture is too small. Your support gives Adeline, and all children like her, a fighting chance. From Anna, from Michael, from Adeline, from all of us: thank you for your support, thank you for believing in hope.

My Team Members

Member

Renee Moles

Raised so far:

$197

Member

Anna Pitman

Raised so far:

$2,603

Member

Rhi Harby

Raised so far:

$100

Member

james Reti

Raised so far:

$5,662

Member

Nicole Heffernan

Raised so far:

$541

Member

Chantel Heldt

Raised so far:

$1,260

Member

Michael Leith

Raised so far:

$1,069

Member

Lea Happes

Raised so far:

$28

Member

Zoe Munce

Raised so far:

$407

Member

Shaylee Munce

Raised so far:

$17

Member

Mikaela Pitman

Member

Zoe Alvey

Raised so far:

$190

Member

Airlie Eastwood

Raised so far:

$266

Member

Allyce Wright

Raised so far:

$750

Member

Mya James

Raised so far:

$558

Member

Megan Fenwick

Raised so far:

$767

Member

Hamish Johnston

Raised so far:

$499

Member

Helena Margarita Guarin Nuรฑez

Raised so far:

$210

Member

Angela Joyce

Raised so far:

$435

Member

Angela Leta Kaye

Raised so far:

$619

Member

Taylor Hatch

Member

Steve Gauci

Raised so far:

$106

Member

Max Tamatoa

Raised so far:

$54

Member

Jarrad Raddon

Raised so far:

$2,259

Member

Kelly Skinner

Member

Sonja Grovermann

Raised so far:

$63

Member

Emma Bacon

Raised so far:

$907

Member

Brittany Campo

Member

Brittany Anderson

Raised so far:

$211

Member

Alyssa Woodley

Raised so far:

$3,442

Member

Talia Henshall

Member

Holly Escott

Raised so far:

$266

Member

Olivia Ashworth

Raised so far:

$1,285

Member

Jenna Lippert

Raised so far:

$362

Member

Candice Marsden

Raised so far:

$1,508

Member

Catherine Anselmo

Raised so far:

$54

Member

Brit Wood

Member

Paige Leith

Raised so far:

$518

Member

Kelly Skinner

Raised so far:

$2,588

Member

Isabelle Charter

Raised so far:

$211

Member

Eve Curtis

Raised so far:

$642

Thank you to our Sponsors

$32

Anonymous

1 month ago

$53

Mitchell Smith

Get it

1 month ago

$54

Hone Brausch

Never fail to inspire! My Bro! Mauri Ora

1 month ago

$54

Alan Gibson

1 month ago

$80

Kate Maclean

Sending lots of love โค๏ธ

1 month ago

$50

Kristy Leggat

1 month ago

$50

Conrad Murray

Well done bro on surpassing your goal of $5k and well done on supporting a great cause! All the best Mr Reti!

1 month ago

$54

Stephanie Downey

1 month ago

$106

Ab

What a king! Great cause

1 month ago

$317

Halls Creek Home

Respect Skippy I’m expecting you to skip in September seeing your progress numbers …. I’m no mathematician but 31 days in a month and you wanted to do 100 a day … keep going Reti … 1700 to go

1 month ago

$106

A Nonamous

1 month ago

$106

Winston Mccarthy

Just keep skipping

1 month ago

$30

Olivia Nicholson

1 month ago

$20

Cammmmm

I wanna see some double unders and crossovers pls

1 month ago

$100

Claire Haynes

Well done James. Adeline is a true gift and so is her amazing mumma. ๐Ÿค

1 month ago

$23

Shariff

Good on you James!!

1 month ago

$50

Ko Tane Ahau

Better do 1 thousand for one day boyee

1 month ago

$54

Fritz Reynders

All my love to Adeline

1 month ago

$23

Zenek Zurakowski

Great work

1 month ago

$54

Kayla Mcnaught

1 month ago

$100

G

1 month ago

$106

Jack Frater

Good stuff legend! Keep skipping!!

1 month ago

$33

Nadene Winchester

Awesome effort e hoa - for such a worthy cause.

1 month ago

$12

J Brown

James u are a champ

1 month ago

$106

Lena O Hagan

1 month ago

$100

Anonymous

Good on you e hoa, I wish there were more people in the world like you

1 month ago

$54

Mams, Beaudy & Kenny

On ya, Reti!

1 month ago

$106

Shana

1 month ago

$28

Chuddy

Awesome mahi cuz

1 month ago

$104

Daniel Casella

Love your work James!

1 month ago

$54

Vannessa Felix

Ka pai James. Keep it up x

1 month ago

$106

Bubba

Awesome work bro! Keep it going

1 month ago

$106

Holly Reti

Love your work, such a great cause! Love to beautiful Adeline & her lovely family.

1 month ago

$33

Warren August

1 month ago

$54

Kylee Stewart

1 month ago

$54

Sian Wiley

Very nice of you to be raising money for such a beautiful family. Happy to donate. Hope you and the family are well.

1 month ago

$20

Selena Mclaren

1 month ago

$54

Matty Markwick

1 month ago

$106

Michaela Johnstone

1 month ago

$520

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$520

Sustainable Future Solutions

Let’s skip to a cure

1 month ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$54

Jenna Reti

1 month ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$54

Joanne Reti

1 month ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$54

Anonymous

just keep skipping , just keep skipping Chur rah

1 month ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$53

Gene Convery

You can only have this if you keep working out in your work clothes hahaha Proud of you bro!! Keep pushing!

1 month ago

$106

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$106

Shannon

โค๏ธโค๏ธโค๏ธ

1 month ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

1 month ago

$50

Maiwa Kitchen

Practise for your skips to the bar in November

1 month ago

$33

Leash & Remy Semenoff Friconnet

Keep up the skipping Uncle J!

2 months ago

$54

Kyle Antony

Slay

2 months ago

$54

Gaby Risco

2 months ago

$100

Sarah Nixon

Get it big guy

2 months ago

$54

Richie

What an awesome cause brother! Keep up the good work.

2 months ago

$104

Michael Borg

2 months ago

$106

Ollie & Cliffy

Good on’ya Mr Reti ๐Ÿค—

2 months ago

$54

Ryan Ng

2 months ago

$106

Mark Gaskin

Well done bro ๐Ÿซฑ๐Ÿผ‍๐Ÿซฒ๐Ÿฝ

2 months ago

$106

Baby Spa Perth

We need more people like you James. Sending all my love and strength to the family ๐Ÿค

2 months ago

$12

Geoff Tolo

Good on bro

2 months ago

$54

Brittanie Antulov

2 months ago

$23

Keira Istead

2 months ago

$33

James Berking

Get going brother ๐Ÿ˜‚๐Ÿค˜๐Ÿพ

2 months ago

$59

Lena Mcclory

๐Ÿ™๐Ÿ’•

2 months ago

$54

Shinade

Get it Hemi!!!

2 months ago

$54

Sophia P

2 months ago

$54

Kate Maclean

2 months ago

$12

Caitlin Broad

Amazing well done Reti ๐Ÿค—

2 months ago