💙 I Love Someone who is RARE 💙

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0 km

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So far I’ve completed 0 Ks for Kids this August

Leukodystrophy has no face , until it’s the face of someone you know .

Diagnosed with a rare genetic disease at the tender age of six , our son Mason braved his battle with Metachromatic Leukodystrophy with a smile that brightened the darkest of days , until he passed in 2017 at the age of nine. With research,  the possibilities of a cure are endless and by choosing to donate whether big or small you are Supporting the FIGHTERS ... Admiring the SURVIVORS ... Honouring the TAKEN ... and never , ever giving up HOPE ...

Did you know that 1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom!

This August, I’m taking on the Ks for Kids challenge - walking or running to raise funds for Children’s Medical Research Institute, supporting scientists who are working today to find cures for tomorrow.

Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.

Every step I take is for them. Your donation will help me go the distance and fund vital research!

My Impact

So far this year I helped provide...

4

Hours of research

For every $50 raised, one hour of research is funded

Biggest Donor

Jean-ius Donor

$110

Thank you so much to my biggest supporter, Anne Drenth, for donating an incredible $110 to help fund vital research into curing children’s genetic diseases.

My Achievements

Raised so far

With your help, I have raised...

$181

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Anne Drenth

$110

Thank you so much to my biggest supporter, Anne Drenth, for donating an incredible $110 to help fund vital research into curing children’s genetic diseases.

My Impact

So far this year, I've helped fund...

4

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to our donors

$110

Anne Drenth

For our very special Mason who we miss so much!!

1 week ago

$28

Michelle Goddard

1 week ago

$23

Elise Steel

Cheering you on Sal💙

1 week ago

$20

Bree

1 week ago