💙 I Love Someone who is RARE 💙

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My Activity Tracking

311
kms

My target 310 kms

311 km

of 310 km

So far I’ve completed 311 Ks for Kids this August

Leukodystrophy has no face , until it’s the face of someone you know .

Diagnosed with a rare genetic disease at the tender age of six , our son Mason braved his battle with Metachromatic Leukodystrophy with a smile that brightened the darkest of days , until he passed in 2017 at the age of nine. With research,  the possibilities of a cure are endless and by choosing to donate whether big or small you are Supporting the FIGHTERS ... Admiring the SURVIVORS ... Honouring the TAKEN ... and never , ever giving up HOPE ...

Did you know that 1 in 20 Aussie kids are born with a genetic disease or birth defect? That’s one in every classroom!

This August, I’m taking on the Ks for Kids challenge - walking or running to raise funds for Children’s Medical Research Institute, supporting scientists who are working today to find cures for tomorrow.

Your donation will help keep labs running, research advancing, and hope alive for kids who need it most.

Every step I take is for them. Your donation will help me go the distance and fund vital research!

Latest updates

11 Aug 2025 by Sally Windeyer

Monday 11.08.2025

Eleven days in and I’ve reached 25% of my 310km goal . Here’s to another great week ahead , thankyou for your support , it truly means the world 💙
05 Aug 2025 by Sally Windeyer

Tuesday 05.08.2025

Mother Nature turned on the weather today , day five and another ten down . Thank you to each and every one of you that has donated I truly appreciate all of your support !

My Impact

So far this year I helped provide...

83

Hours of research

For every $50 raised, one hour of research is funded

Biggest Donor

Jean-ius Donor

$530

Thank you so much to my biggest supporter, Anonymous, for donating an incredible $530 to help fund vital research into curing children’s genetic diseases.

My Achievements

Raised so far

With your help, I have raised...

$4,125

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Anonymous

$530

Thank you so much to my biggest supporter, Anonymous, for donating an incredible $530 to help fund vital research into curing children’s genetic diseases.

My Impact

So far this year, I've helped fund...

83

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to our donors

$57

Anonymous

1 month ago

$54

Leigh Martin

1 month ago

$110

John Andrews

Congratulations on making it to the finish Sally! What an achievement.

1 month ago

$110

Marko Biondic

Go Sal!

1 month ago

$190

Toni Dunn

Fund Raising Day xxx

1 month ago

$32

Nicole Dowling

1 month ago

$106

Sue O'shea

Unbelievable effort Sally - inspiring !

1 month ago

$92

Glenn Cairncross

Go Sal!!! I think I might leapfrog you into#1!

1 month ago

$50

Caitlin Walsh

Proud of you Sal xx

1 month ago

$110

Regan Stone

2 months ago

$57

Corrinne Blackwell

2 months ago

$530

Anonymous

2 months ago

$50

Facebook Donation

2 months ago

$23

Poppy Strong

well done Sal xxxxxlove Poppy Strong

2 months ago

$33

Megan Bellamy

For you Mason 💙

2 months ago

$50

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$50

Mel & Brad Martin

2 months ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$54

Noah Windeyer

I love you mummy you have been working hard for the past few days KEEP IT UP ! I’m proud of you 💙

2 months ago

$28

Cassie Joughin

Great effort Sally

2 months ago

$28

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$110

Matched Gift

Your donation has been doubled by our sponsors!

2 months ago

$110

Garry Bartlett

2 months ago

$110

Marie

2 months ago

$38

Anneliza Alverne

2 months ago

$57

Anthony Nazombe

Good luck Sally!

2 months ago

$106

Kolbe Family

Big hugs Sally! x Nic, Mark, Miki, Max & Thomas

2 months ago

$44

Jack Fletcher

2 months ago

$110

Rob Shelley

2 months ago

$50

Cindy Wood

2 months ago

$100

Nathan Mckenna

2 months ago

$57

Mark Short

I dont know what to say Sally but being a dad who is so protective of his loved ones i had a real stop and think moment.... I am sad to here of the loss of Mason but he is obviously still there in your heart and will be walking alongside you. Shorty

2 months ago

$57

Anthony Greenaway

2 months ago

$54

Michael Dart

2 months ago

$28

Robert Jackson

Well done Sally. Great effort.

2 months ago

$57

Lisa Jerman

Go Sal !!

2 months ago

$57

Bev Orell

Go Sally go!

2 months ago

$86

Phil Tilden

2 months ago

$22

Bobby-jo Abela

You've got this Sal x Sending all our love

2 months ago

$40

Jack Mulvey

2 months ago

$57

Anonymous

2 months ago

$100

Toni Dunn

Great Work Sally so proud of you.

2 months ago

$20

Rhyanan Cranfield

You go Sal!

2 months ago

$23

Renee Schembri

3 months ago

$105

Grant Windeyer

I believe in you… you got this !

3 months ago

$264

Star Group

3 months ago

$211

John Andrews

Good luck Sally!

3 months ago

$110

Anne Drenth

For our very special Mason who we miss so much!!

4 months ago

$28

Michelle Goddard

4 months ago

$23

Elise Steel

Cheering you on Sal💙

4 months ago

$20

Bree

4 months ago