Once again we are trying to raise awareness, educate, and raise funds to help the extraordinary kids that fight everyday with these unusual & crazy genetic disorders.
Harry's body is certainly giving his medical team headaches. Nothing is normal, nothing is easy, yet this superstar keeps pushing, keeps showing up, keeps " keeping it real".
Can you help this superstar?We know times are tough for everyone, even a "fiver" will help keep superstars like Harry keep fighting!
With your help, I have raised...
Youāre helping fund research to find cures for kids with genetic diseases. Every dollar counts!
Thank you so much to my biggest supporter, Amanda Conn, for donating an incredible $12 to help fund vital research into curing childrenās genetic diseases.
So far this year, I've helped fund...
Every $50 raised funds an hour of vital research.
$12
