Alessia's Fundraiser

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One Injection Gave Alessia a Future

When Alessia was born, she looked perfect — tiny fingers, a strong heartbeat, and a future full of hope.Ā 

Her parents, Adriana and Adam, had no idea that just two weeks later, a phone call would change everything. Alessia had become the first baby in NSW to be diagnosed with Spinal Muscular Atrophy (SMA) through newborn screening, a rare and fatal genetic disease that, without treatment, usually claims a child’s life before their second birthday.Ā 

ā€œWe were devastated,ā€ said Mum Adriana. ā€œAlessia hadn’t shown any symptoms yet, but we were told we had to act fast.ā€Ā 

But there was a glimmer of hope.Ā 

NSW had just joined an international clinical trial for a revolutionary new gene therapy. With just one infusion, scientists believed they could correct the genetic fault, offering Alessia not just more time, but a real chance at life.Ā 

Alessia slept through the treatment.Ā 

And then… she began to thrive.Ā 

Her parents watched with cautious optimism as she smiled, sat up, took her first steps. And today, Alessia is a joyful seven-year-old, full of personality, laughter, and energy. The only sign of her early diagnosis is a slight weakness in her legs.Ā 

Alessia's story is more than a medical miracle, it’s proof that research saves lives. Her life was changed because of science. Because of people like you.Ā 

Donate now to support the research that gives kids like Alessia a future.

Funds raised over the years

Biggest Donor

Jean-ius Donor

$2,020

Thank you so much to my biggest supporter, Michael Calabro, for donating an incredible $2,020 to help fund vital research into curing children’s genetic diseases.

Raised so far

With your help, I have raised...

$4,098

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Michael Calabro

$2,020

Thank you so much to my biggest supporter, Michael Calabro, for donating an incredible $2,020 to help fund vital research into curing children’s genetic diseases.

My Impact

So far this year, I've helped fund...

82

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to my donors

$264

The Russo Family

2 days ago

$2.02k

Michael Calabro

2 weeks ago

$104

Natasha Napoli

2 weeks ago

$57

Sue Savetta

Wishing you all the best in reaching your target. It’s good to hear Alessia is doing so well.

2 weeks ago

$211

R & Lm Russo

Grateful.

3 weeks ago

$12

Melanie James

1 month ago

$110

Hayley Noble

You have a contagious bright energy Alessia, and little Hayley looks forward to growing up with you xx

1 month ago

$10

A S

1 month ago

$1,000

Craig Mclaughlin

Celebrating Alessia’s bright future Adam and Adriana, when I read this story tonight it brought tears. What a miraculous and heartfelt experience. Aside from having the greatest parents ever, the research and specialists that made this happen for your daughter is inspiring. I’m making this donation as a small contribution to this important work, ensuring that hope ensues for parents just like you in the future.

1 month ago

$110

Adriano Luongo

1 month ago

$200

Jennifer Philps

Alessia you are a star and we just love your spirit and you will always reach your goals so here is a start

1 month ago