Alessia's Fundraiser

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One Injection Gave Alessia a Future

When Alessia was born, she looked perfect — tiny fingers, a strong heartbeat, and a future full of hope.Ā 

Her parents, Adriana and Adam, had no idea that just two weeks later, a phone call would change everything. Alessia had become the first baby in NSW to be diagnosed with Spinal Muscular Atrophy (SMA) through newborn screening, a rare and fatal genetic disease that, without treatment, usually claims a child’s life before their second birthday.Ā 

ā€œWe were devastated,ā€ said Mum Adriana. ā€œAlessia hadn’t shown any symptoms yet, but we were told we had to act fast.ā€Ā 

But there was a glimmer of hope.Ā 

NSW had just joined an international clinical trial for a revolutionary new gene therapy. With just one infusion, scientists believed they could correct the genetic fault, offering Alessia not just more time, but a real chance at life.Ā 

Alessia slept through the treatment.Ā 

And then… she began to thrive.Ā 

Her parents watched with cautious optimism as she smiled, sat up, took her first steps. And today, Alessia is a joyful seven-year-old, full of personality, laughter, and energy. The only sign of her early diagnosis is a slight weakness in her legs.Ā 

Alessia's story is more than a medical miracle, it’s proof that research saves lives. Her life was changed because of science. Because of people like you.Ā 

Donate now to support the research that gives kids like Alessia a future.

Funds raised over the years

Biggest Donor

Jean-ius Donor

$2,945

Thank you so much to my biggest supporter, Alessia's Fundraiser Event, for donating an incredible $2,945 to help fund vital research into curing children’s genetic diseases.

Raised so far

With your help, I have raised...

$15,091

You’re helping fund research to find cures for kids with genetic diseases. Every dollar counts!

Biggest Donor

Alessia's Fundraiser Event

$2,945

Thank you so much to my biggest supporter, Alessia's Fundraiser Event, for donating an incredible $2,945 to help fund vital research into curing children’s genetic diseases.

My Impact

So far this year, I've helped fund...

302

Hours of research

Every $50 raised funds an hour of vital research.

Thank you to my donors

$110

Courtney Morris

1 week ago

$2.95k

Alessia's Fundraiser Event

Event sales, raffles and donations

1 week ago

$54

Anne Nuguid

2 weeks ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$54

Stephanie Faulkner

2 weeks ago

$211

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$211

Shane Chalmers

Hope you had a great day lovely. Xx

2 weeks ago

$54

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$54

Evie Domingo

2 weeks ago

$264

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$264

Anonymous

2 weeks ago

$2.25k

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$2.25k

Adam Sharpe

2 weeks ago

$53

Matched Gift

Your donation has been doubled by our sponsors!

2 weeks ago

$53

Goakesy

2 weeks ago

$20

Emma Bonfield

2 weeks ago

$23

Kali Sekhas

3 weeks ago

$104

The Rockwell's

You are an inspiration, beautiful girl.

3 weeks ago

$56

Trish Tomarchio

For a beautiful little girl

3 weeks ago

$23

Giuseppe Tomarchio

3 weeks ago

$54

Anonymous

Many thanks for the great work you do.

3 weeks ago

$106

Maria & Vince Ruggiero

3 weeks ago

$57

Carlton Family

3 weeks ago

$106

Anonymous

1 month ago

$211

Chianese And Touma Family

God bless you in your endeavors

1 month ago

$65

Zina Bastide

1 month ago

$1.02k

Previte Family

1 month ago

$110

Anonymous

1 month ago

$104

Natalie & Anthony

2 months ago

$264

The Russo Family

2 months ago

$2.02k

Michael Calabro

2 months ago

$104

Natasha Napoli

2 months ago

$57

Sue Savetta

Wishing you all the best in reaching your target. It’s good to hear Alessia is doing so well.

2 months ago

$211

R & Lm Russo

Grateful.

2 months ago

$12

Melanie James

3 months ago

$110

Hayley Noble

You have a contagious bright energy Alessia, and little Hayley looks forward to growing up with you xx

3 months ago

$10

A S

3 months ago

$1,000

Craig Mclaughlin

Celebrating Alessia’s bright future Adam and Adriana, when I read this story tonight it brought tears. What a miraculous and heartfelt experience. Aside from having the greatest parents ever, the research and specialists that made this happen for your daughter is inspiring. I’m making this donation as a small contribution to this important work, ensuring that hope ensues for parents just like you in the future.

3 months ago

$110

Adriano Luongo

3 months ago

$200

Jennifer Philps

Alessia you are a star and we just love your spirit and you will always reach your goals so here is a start

3 months ago